Rick Rodgers
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Hi Everybody!!!! My name is Rick:einstein::einstein:
Like the sign says, I'm new here. Let me introduce myself and
let you know what I am thinking.
I have Secondarily Generalized Complex Partial. Been this way
for the better part of four decades. I would have written sooner, but I had a bad weekend.
Let's talk about my 'actions'.
It starts with the typical 'absence'; missing bits and pieces, and it
could last for up to eight hours or more if I don't push it.
Must take it easy, no stress. But even so, sometimes I'm not so
lucky. Grand Mal
The last episode ,(i hate the 's' word), was caused by a switch
to generics, which I was finally able to reverse.
Some people tell me the period preceeding is an "Aura", But
their definition of an aura seems to have a lot of symptoms I
have never had. I don't have any psychic phenomenae, no rubbing
parts of my body,no 'lights', no smells. Just this constant
intermittent reality. The kind where you want to sit down, and
stay there. You're walking on the edge---literally. No sense in
talking, cant' hold a conversation.
The best I can figure, the aura I am feeling is the 'partial'
section...before it goes generalized. It seems that there should
be a way to stop the 'spike and wave' or contributing 'theta'
formations before disaster strikes. Until I find some way to
exercise my ability to control.... there's not much choice.
Ever heard of a 'brainmaster'?? That's for another conversation.
According to the American Academy of Neurology, in the process
of treatment for Status Epilepticus,(yes, it has happened),
there are 'rescue' medications available [For use at home].
Liquid forms of Diazepam or Lorazepam of which 1 -2 ml. can be
dropped into the cheek pouch of the person suffering the attack.
This could very well be the way to stop all secondarily
generalized seizures!!! I know it doesn't seem too big a deal to
a Neurologist...I have inuqired as to their existence, and was
informed those are for the worst of the uncontrolled.
Just need those packs!!!
Well, it IS a big deal for me. ANYTHING to stop the formation of
a 's'.
What else is there, or how can I go about obtaining some of
these rescue packs if I can't get my neurologist to prescribe
them??
Seems like on my first post I am already going rogue.
Thank you for your time, I appreciate it.
RICK
Like the sign says, I'm new here. Let me introduce myself and
let you know what I am thinking.
I have Secondarily Generalized Complex Partial. Been this way
for the better part of four decades. I would have written sooner, but I had a bad weekend.
Let's talk about my 'actions'.
It starts with the typical 'absence'; missing bits and pieces, and it
could last for up to eight hours or more if I don't push it.
Must take it easy, no stress. But even so, sometimes I'm not so
lucky. Grand Mal
The last episode ,(i hate the 's' word), was caused by a switch
to generics, which I was finally able to reverse.
Some people tell me the period preceeding is an "Aura", But
their definition of an aura seems to have a lot of symptoms I
have never had. I don't have any psychic phenomenae, no rubbing
parts of my body,no 'lights', no smells. Just this constant
intermittent reality. The kind where you want to sit down, and
stay there. You're walking on the edge---literally. No sense in
talking, cant' hold a conversation.
The best I can figure, the aura I am feeling is the 'partial'
section...before it goes generalized. It seems that there should
be a way to stop the 'spike and wave' or contributing 'theta'
formations before disaster strikes. Until I find some way to
exercise my ability to control.... there's not much choice.
Ever heard of a 'brainmaster'?? That's for another conversation.
According to the American Academy of Neurology, in the process
of treatment for Status Epilepticus,(yes, it has happened),
there are 'rescue' medications available [For use at home].
Liquid forms of Diazepam or Lorazepam of which 1 -2 ml. can be
dropped into the cheek pouch of the person suffering the attack.
This could very well be the way to stop all secondarily
generalized seizures!!! I know it doesn't seem too big a deal to
a Neurologist...I have inuqired as to their existence, and was
informed those are for the worst of the uncontrolled.
Just need those packs!!!
Well, it IS a big deal for me. ANYTHING to stop the formation of
a 's'.
What else is there, or how can I go about obtaining some of
these rescue packs if I can't get my neurologist to prescribe
them??
Seems like on my first post I am already going rogue.
Thank you for your time, I appreciate it.
RICK
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