bdhshakes
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Hey everyone,
A few weeks ago I finished up a SEEG session that took forever to actually get my seizures going but we got tons of data (woohoo!). Unfortunately, they ruled me out for a brain resection surgery because my seizures origin point is directly in my speech area and the risk to losing the ability to talk/facial movements is too high in their opinion. The back up plan was supposed to be a RNS but they decided against that as well. So, the final plan is to stick a DBS in me in a few weeks. I'm not terribly optimistic for great results but gotta try and stay positive.
But let's get to the point with my questions. As we all know memory issues are typical directly after seizures, I'm all too used to this. I had so many big seizures my last 3 days of the SEEG that I have no memory of those 3 days. I had family with me that filled in all the gaps for my discussions with my neurologist and surgeon so that's all fine. However, now that i've been home and recovering I still am having memory issues even though i'm currently not having seizures. I'll have several conversations with my wife and the next day start the same conversation but have no memory of us having it the day before. Has anyone experienced anything like this after going through a SEEG procedure, or doing the other mesh version? If I was having seizures I wouldn't be too alarmed by this but it's been very concerning to me as I am now returning to work and worry i'll forget things I've done, or tasks I'll receive from my team. I've reached out to my neurologist and surgeon about this but haven't yet received a response - so still waiting there.
TL;DR - Have any of you had big memory issues, unrelated to seizures, after going through the SEEG or mesh procedures?
A few weeks ago I finished up a SEEG session that took forever to actually get my seizures going but we got tons of data (woohoo!). Unfortunately, they ruled me out for a brain resection surgery because my seizures origin point is directly in my speech area and the risk to losing the ability to talk/facial movements is too high in their opinion. The back up plan was supposed to be a RNS but they decided against that as well. So, the final plan is to stick a DBS in me in a few weeks. I'm not terribly optimistic for great results but gotta try and stay positive.
But let's get to the point with my questions. As we all know memory issues are typical directly after seizures, I'm all too used to this. I had so many big seizures my last 3 days of the SEEG that I have no memory of those 3 days. I had family with me that filled in all the gaps for my discussions with my neurologist and surgeon so that's all fine. However, now that i've been home and recovering I still am having memory issues even though i'm currently not having seizures. I'll have several conversations with my wife and the next day start the same conversation but have no memory of us having it the day before. Has anyone experienced anything like this after going through a SEEG procedure, or doing the other mesh version? If I was having seizures I wouldn't be too alarmed by this but it's been very concerning to me as I am now returning to work and worry i'll forget things I've done, or tasks I'll receive from my team. I've reached out to my neurologist and surgeon about this but haven't yet received a response - so still waiting there.
TL;DR - Have any of you had big memory issues, unrelated to seizures, after going through the SEEG or mesh procedures?