Seizure that seemed BETWEEN a simple and complex partial?

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lindsayschu2

lindsayschu2

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Has anyone had a seizure that felt somewhere between a SP and CP, like it was a SP moving toward a CP but didn't fully get there? Like it started as an SP and then had that distinct feeling of a CP in its beginning stages but didn't fully break into a full CP?
 
Yes, definitely. I don't get these often, and I describe mine as "simple to tonic to almost complex" seizures. For me these are the among the worst type, and the last one I had took 2 days to recover from.
 
Mine had after shocks of more mild ones that continued for an hour and a half until clonazepam kicked in. Deep breathing and picturing a waterfall at work to keep them under control. New one for me. Thanks Jen, always so helpful
 
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I have these after-shocks, at times too - great way to describe them! Is clonazepam your rescue medication? I've never used one. How much do you take? I do not want to add in another medication to take on a regular basis, which is what the epileptologist has been considering. I feel like if I could just take something at the time of one of these bad ones, I would be okay without having to add another med. into the mix on a regular basis.
 
Yes my neuro gave me 'clonazepam wavers'--sublingual clonazepam that gets into your system much faster and helps stop any kind of repeat seizure activity. It's definitely for rescue use or occasional insomnia, it's a benzo so addictive and loses effectiveness. I only use it when I really need it. I only use .5 miligrams which is a low dose but I use it so seldom even that makes me loopy so yesterday I used half and it helped.
 
masterjen said:
I have these after-shocks, at times too - great way to describe them! Is clonazepam your rescue medication? I've never used one. How much do you take? I do not want to add in another medication to take on a regular basis, which is what the epileptologist has been considering. I feel like if I could just take something at the time of one of these bad ones, I would be okay without having to add another med. into the mix on a regular basis.
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My neuro said to take 1 mg clonazpam if I get waves of seizures.
 
lindsayschu2 said:
Yes my neuro gave me 'clonazepam wavers'--sublingual clonazepam that gets into your system much faster and helps stop any kind of repeat seizure activity. It's definitely for rescue use or occasional insomnia, it's a benzo so addictive and loses effectiveness. I only use it when I really need it. I only use .5 miligrams which is a low dose but I use it so seldom even that makes me loopy so yesterday I used half and it helped.
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I don't have clonazepam wavers. I just chew one up. They don't taste bad or my husband will give me one of his 1mg Ativan and I chew it up.
 
Maybe chewing it up has the same effect. I know the sublingual ones are absorbed more through your mouth rather than through your digestive tract, so it gets in your bloodstream faster. Either way it really seems to help stop the series.
 
lindsayschu2 said:
Maybe chewing it up has the same effect. I know the sublingual ones are absorbed more through your mouth rather than through your digestive tract, so it gets in your bloodstream faster. Either way it really seems to help stop the series.
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Yes it does help a lot. I wish it hadn't taken 3 years to figure out what is wrong with me. The shorter my seizures, the less time it takes to recover.
Before we knew what was wrong I would go to the doctor and ask for a prescription for 3 days off from work. She always gave me the prescription because I looked like hell. Only thing is I would never admit to my boss that I felt bad so I would go into work anyway.
 
Biggest problem with taking the clonazepam for seizures is they were prescribed by a different doctor for sleep. If I use them for seizures then I run out and can't sleep.
 
Which is least addictive, the ativan or clonazepam? Do they work for the same seizure types?
 
masterjen said:
Which is least addictive, the ativan or clonazepam? Do they work for the same seizure types?
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They both work for seizures and since they are both benzo's they are probably equally addictive.
 
I've never taken ativan so I don't know--I used to take clonazepam about once a week, and was fine with that, but it would be a little less effective, but not a whole lot. If I only take it every two weeks it's fully effective. I wouldn't take it multiple times a week unless I was really having big problems, but then try not to take it at all the next week. I read that clonazepam is effective for status seizures, as well as warding off tonic clonics if taken after auras, if there is usually enough of a time delay between the two. It didn't specify between temporal lobe vs., say, frontal lobe.
 
I don't worry about addiction too much. When I was in severe back pain I was on extended release morphine plus up to 60 mg of roxicodone every day for over 2 years. Once I had 16 hours of surgery and was no longer in pain I told my pain management doctor I wanted to wean off the pain meds. He told me I still needed them (he still needed my money) and I knew I didn't need them any longer. I went on line to where junkies wrote about how they got clean and I managed to wean myself in less than 6 weeks, no thanks to my pain management doctor. No one ever thought I would come off pain meds, but me.
 
lindsayschu2 said:
By the way, above, I meant to say "Clonazepam wafers" not "wavers" lol.
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Don't worry about the mistake. I proof read before every post and I can't believe the mistakes I make when I go back and read something the next day.
 
I'm more or less laughing about it--the night before, I'd taken 1.5 milligrams--3X my normal dose--and was still really woozy. My seizures were way worse than anything I've had in a long time because I tried to quit nicotine gum (and I chew a ton of that stuff) and I was really worried a TC was coming. Lesson learned: Don't quit anything addictive suddenly with epilepsy. Not a good thing!!!
 
I was just thinking the other day how my seizures seemed to get worse after surgery. Maybe it was because I quit my pain meds so quickly. I was also on Neurotin purely for nerve pain (it was before anyone knew I was having seizures) and they took me off of it quickly so I could have surgery. There was a risk of bleeding if I stayed on it.
 
lindsayschu2 said:
I'm more or less laughing about it--the night before, I'd taken 1.5 milligrams--3X my normal dose--and was still really woozy. My seizures were way worse than anything I've had in a long time because I tried to quit nicotine gum (and I chew a ton of that stuff) and I was really worried a TC was coming. Lesson learned: Don't quit anything addictive suddenly with epilepsy. Not a good thing!!!
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It's a good thing I gave up cigarettes before the seizures started then. I was smoking 3 packs a day.
 
I've been chewing more than the max dosage for years. I cut it down 90%, not knowing the stress withdrawals put on you physically. I found some thread where all these people were talking about the seizures they got while trying to quit. 3 packs a day MAB--wow. So glad you quit!!!!!! And good for you, that's quite the accomplishment!
 
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