Seizures while sleeping

[tinyfrogs]

For those of you who know you have seizures in your sleep what does it feel like? I am weaning off trileptal, actually close to the end of this process, which is a different long story. I had only ever had simple and complex partial seizures and a few tremor instances a while ago but never full blown physical seizures. Something has been happening in my sleep recently and it just dawned on me that it could be seizures. The first time I was dreaming that I was in a tornado and trying to find something to hold onto as tight as I could. It woke me up and took me a minute to realize my whole body was tensed up to the point of tingling like when your foot falls asleep except it was everywhere. I thought it was just because Id had the nightmare. That was a few days ago. Today it happened again when I woke up from a nap. I dont remember dreaming anything but my body had that same problem and Im just wondering if these are seizures or something else. Now Im scared to go to sleep.

 

[bighealey]

I woke up completely disoriented and confused. I managed to get my clothes on, go to my commute partners house (auto pilot I guess). I was taken back home (did not know where or who I was) and was asking where my dog was. My dog died a while back. I was taken to the ER. All this because I was on reduced dose and missed a med. Some how my Neurologists recon I had a seizure in my sleep. I lost a lot of memories as usual with all my seizures.

 

[N Sperlo]

Sleep seizures are hard to figure out. I wouldn't realize I had them. I would confuse simple partial seizures with dreams. The few T/C seizures I would wake up confused from with Jamais-vu, like Bighealey. One thing I noticed when everything was under control is that until I was properly medicated l wasn't remembering any dreams.

 

[bighealey]

Holy Smoley that's what you call it. Jamais vu This is my new life. I had rebuilt three antique motorcycles before my seizures started and don't remember doing it.

 

[Navy Veteran]

The term they use for me is nocturnal epilepsy.
I used to have about 5-6 a month before I came forward and told them what was happening. With me, because I was not treated right away, my right shoulder was destroyed and they needed to replace it.
I still get them, tho, not at the frequency I used to. I know I have had one when I wake up and I feel like I just ran a marathon. Because I am asleep, I do not feel anything, but damn, when I wake up I sure as hell feel them then.

 

[Tez_20]

I've had seizures in my sleep for many years but when I come around I'm drained totally out besides disorientation, stomach cramps and feeling like someones kicked my whole body...internal bruising.

 

[Sweet Pea]

Sleep seizures - especially Partials - are REALLY hard to distinguish (especially by ourselves).

I have times where I wake up and I am confused, exhausted physically, brain fogged, and extremely clumsy. And this will last for several hours.

I also have episodes - like the other night - where I wake up in the middle of the night; hallucinating, disoriented, and talking to to my husband who I thought was awake. But I came out of it slowly and became dissociative and extremely confused - just to find my husband in bed with me SLEEPING. I woke him up and asked him 200 weird questions.

My Neurologist told me there is no real way to tell about Partial Seizures in sleep without an EEG. Which isn't that helpful

 

[tinyfrogs]

Thank you everyone for all the replies. I'm seeing a Dr on Monday anyway and I'm going to tell them about it. They've been considering starting me on lamictal or something so hopefully it will get sorted oit soon. Whatever it was, it made me feel exhausted and scared when I woke up.

 

[N Sperlo]

Jamais-vu is the utter confusion of where you are, why you are, who is this.... Nothing is familiar. Polaropposite of deja-vu.

What you have are completely lost memories. I lost one week once. Scared the hell out of me.

 

[N Sperlo]

I do not feel anything, but damn, when I wake up I sure as hell feel them then.

Great workout, though. I was a lot more ripped before I got things under control. :roflmao:

 

[Tez_20]

Jamais-vu is the utter confusion of where you are, why you are, who is this.... Nothing is familiar. Polaropposite of deja-vu.

What you have are completely lost memories. I lost one week once. Scared the hell out of me.

Seizures do cause memory loss and I know that when I have a temporal-lobe seizure I can't remember a thing and my hubby says my mind reverts back to when I was younger....another lovely symptom with our seizures.

 

[nightowl47]

Nocturnal Epilepsy

The term they use for me is nocturnal epilepsy.
I used to have about 5-6 a month before I came forward and told them what was happening.
I still get them, tho, not at the frequency I used to. I know I have had one when I wake up and I feel like I just ran a marathon. Because I am asleep, I do not feel anything, but damn, when I wake up I sure as hell feel them then.

I know how you feel! I went to the University of Birmingham Neuroscience Lab for a testing to see if I would be a candidate for the VNS but unfortunately I was not able to get it now. I am still considered

 

[nightowl47]

For the VNS but I am still considered what they call intractable activity I think... my medications don't stop my Epilepsy from happening. They feel as if I may get worse I would be a good candidate for the VNS.
So who really knows? I do know that have no Auras before a seizure so, I am left out there on my own.
However, MR NAVY VETERAN, I AM hoping the best for you!
Please keep in touch,
territripp1965@gmail.com

 

[C0urt]

i probably had one last night, i feel light crap

 

[Tez_20]

i probably had one last night, i feel light crap

Sorry to hear your not feeling to good...mind you they really do knock we about. I've been having them on the trot in the day besides night and the lovely bruises are showing themselves well :tdown:

 

[C0urt]

that's unfortunate, I have been lucky, few day times ones. i still smell like them from time to time, so I guess the drugs are working.