seizures worsen now meds have increased

[crazychick]

Has anyone ever had there seizures increase when there medication has been increased? Mine used to happen once a month on a night on 250mg of keppra. Now im on 1250mg of keppra and they happen on a morning and seem to be every week. Has anyone elsr had this problem?

 

[Chaz1]

yes, we seen this problem, dif med....reduction helped......

Kepra pros can advise you more

 

[crazychick]

Thanx chaz. My neuro my doc i think they dont know what to do.

 

[SlimBlue]

hiya crazychick, can i ask how quickly the dosages have gone up? 250 > 1250 seems a massive jump to me- it takes me months and months to get stable on even a *tiny* increase, and that's after a good month or so of *very* slowly ramping up to the new level in extremely small bits of tablets.

i'm also well aware that the docs will blithely up the dosages and that even the differences between 1 tablet strength to the next available 1 can still have massive effects... as i said, it's usually a case of having to break the tablets up in very small bits and increase *very* slowly because really all they can do with your dosage is inc/decrease it to the next available tablet strength...

and they have *no* real personal idea at all just how bad the side effects can be >:

 

[masterjen]

I'm the same as Slimblue. If my Dr. tells me to increase a dose, I have to halve the usual dose increase or I run into side effect difficulties. I'll eventually get to the new dose she tells me to take, but I sure can't do it the so-called recommended rate of increase. It just means a longer period of time without showing benefits from a new dose increase.

 

[crazychick]

no they have gone up slowly not straight away, its took months to get this far up. Im on highest dose as of today 1500 now. I just want it sorted i dont know what internal damage it is doing.

 

[huskymom]

Your doctor should be doing blood checks as you ramp up to make sure your system is taking it okay.

 

[SlimBlue]

ahh ok then cc, well that's one possible worry out of the way. i guess if you can't think of any other changes that might attribute to the new seizure pattern, and if the new 1500 dose still doesn't change things, then it's time to go back and discuss other med options with your docs.

new med regimes are more than usually a kind of 'let's try this one, and see how it goes- if it doesn't work, we'll try another..' kind of affair and for a lot of people, it's not really a med you want to be taking max dose of for no benefits :s

as huskymom said, they should also be doing regualr bloodwork to keep a check on your system.

 

[pita300]

My Doctor just lowered my Keppra dose. I was on 2000 mg twice a day. He dropped it 250 mg to 1750mg twice a day. we didn't ramp down he just dropped it. I started the new dose last Sunday. I'm like most people slow is best but with this Keppra I was willing to deal with any thing it threw at me just to lower the dose. So far no more seizures than I am normally used to.

Good luck

 

[masterjen]

I had bizarre thoughts and dreams on Keppra when it got to high for me, which at first were thought to be another type of complex partial seizure. It wasn't until the dose was lowered back down that I realized that it was the keppra causing the new occurrences.

 

[crazychick]

Thanks for the replies everyone, im now on 1500mg twice a day i have been on this 3 days now and so far so good, i get weird felings like deja vu when im gonna have a seizure. I think its since my keppra has ben increased as im having more seizures now they have been increased.