Grandma seizures. My sophomore year I was heavy into taking creatine and I tore my MCL during a kickoff return in football. Not thinking about it, I dropped straight off the creatine. This was a major source of energy for my body and so my body began to freak out when it quit getting it from this source. It started trying to make it's own energy, but the wrong kind through jolting the nerves in my body and brain. This caused me to start having grandma seizures. This was scary for me because I had never seen one, but I had just remotely heard about them. Nobody in my family had ever been effected with epilepsy. So, the seizures started with one, and then about 2 weeks later another one. about every other week for 6 weeks, I had one and after going to the doctor each time he diagnosed me with epilepsy. It was amazing the way that they proceeded to get worse. At first he started me on a Depakote regimine with a low dose of 250 mg once a day and then worked all the way up to 2000mg twice a day. This took a year to do, and to no avail. It actually got worse. At the peak of my epilepsy, for three days in a row, I had two each day. And to make things worse, I had gained almost 50 lbs. Yes, "50". We had tried several doctors around the state of Texas and could not find a single one with any combination of medicine that could help. My story changed when I talked with one of my Dad's customers.
He told us about the Mayo Clinic in Minnesota and figured that I would be worth the try. However, we could not afford the trip. With the major help from another customer, I was able to make the trip. While at the Mayo Clinic, I had another seizure but that was to be one of my last. They ran an EEG and induced a seizure. They said that they had never seen the amount of energy that my body could produced and described it as being able to charge a deisel battery in the 8 seconds of the seizure. They started my on a low dose of Keppra and Lamotragine (generic form of Lamictil) and we prayed for the best.
This seemed to work far better, and my seizures slowed down to only one every other week again. We decided to move it up from 250mg(keppra) 250mg(lamotrigine) 2X a day up to 500mg for both of them. This made it even better. After one more seizure about 4 weeks later we thought that I was doing really good. But we were wrong.
I had several of them in one week. I went back to the doctor and did some blood work to find out the amount of medicine that was in my system. The doctor said that on a scale of 1-20 I was at a 2. So we worked my way up to 1000mg of Keppra and 300 mg lamotrigine 2X a day. This worked the best for a long time but I was still having on and off hard body shivers and sinking spells where I would get really tired and have to go lay down.
After going back to the doctor and getting more blood work done, I had only raised to a 7. ONce again we increased the dosage all the way to 2000mg Keppra and 450mg Lamotrigine 2X a day. This was the dose that finally did the trick.
Now after 2 years without having a seizure, I am proud to say that even at the worse, we managed to find a solution. Without the help of all of my family and my parents closest friends who allowed us to pay for the incredibly expensive trips, I would still be under the control of what I would consider to be the worst condition of my lifetime.
I hope that this story may be interesting to somebody, and even if it inspires one person, it is totally worth it. I'm crazy happy that I found this website, but interesting enough, I found it after looking for the "priest soapbar joke" Thanks for reading, if you were interested.
Treatments
He told us about the Mayo Clinic in Minnesota and figured that I would be worth the try. However, we could not afford the trip. With the major help from another customer, I was able to make the trip. While at the Mayo Clinic, I had another seizure but that was to be one of my last. They ran an EEG and induced a seizure. They said that they had never seen the amount of energy that my body could produced and described it as being able to charge a deisel battery in the 8 seconds of the seizure. They started my on a low dose of Keppra and Lamotragine (generic form of Lamictil) and we prayed for the best.
This seemed to work far better, and my seizures slowed down to only one every other week again. We decided to move it up from 250mg(keppra) 250mg(lamotrigine) 2X a day up to 500mg for both of them. This made it even better. After one more seizure about 4 weeks later we thought that I was doing really good. But we were wrong.
I had several of them in one week. I went back to the doctor and did some blood work to find out the amount of medicine that was in my system. The doctor said that on a scale of 1-20 I was at a 2. So we worked my way up to 1000mg of Keppra and 300 mg lamotrigine 2X a day. This worked the best for a long time but I was still having on and off hard body shivers and sinking spells where I would get really tired and have to go lay down.
After going back to the doctor and getting more blood work done, I had only raised to a 7. ONce again we increased the dosage all the way to 2000mg Keppra and 450mg Lamotrigine 2X a day. This was the dose that finally did the trick.
Now after 2 years without having a seizure, I am proud to say that even at the worse, we managed to find a solution. Without the help of all of my family and my parents closest friends who allowed us to pay for the incredibly expensive trips, I would still be under the control of what I would consider to be the worst condition of my lifetime.
I hope that this story may be interesting to somebody, and even if it inspires one person, it is totally worth it. I'm crazy happy that I found this website, but interesting enough, I found it after looking for the "priest soapbar joke" Thanks for reading, if you were interested.
Treatments
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