Simple Partial Status?

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lindsayschu2

lindsayschu2

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For the past three days running, I've had runs of deja vu simple partials--mild, but they just keep coming, for hours, before they let up. It took two days to get in touch with my doc, and he is upping my meds. Should I be worried that this is Simple partial status? Is slowly upping my meds all I can do? AAAaaaah so frustrating I can't get things under control :-(
 
What do you experience? I'm curious to how it may compare to the simple partials I'm having on a daily basis (sometimes hourly basis). Thanks.
 
lindsayschu2 said:
For the past three days running, I've had runs of deja vu simple partials--mild, but they just keep coming, for hours, before they let up. It took two days to get in touch with my doc, and he is upping my meds. Should I be worried that this is Simple partial status? Is slowly upping my meds all I can do? AAAaaaah so frustrating I can't get things under control :-(
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Lindsay, I'm sorry your partials are out of control. It should not take so long to get your doctor to contact you either.

I'm innterested to here what others have to say about this. My simple partials seem to be under good control right npw but I have had the situation you describe where they just keep coming and coming. Sometimes I couldn't tell it they were long seizures or so many short ones coming so close. Sure is exhausting.

I hope your doctor can offer some quick releif.
 
pccoder said:
What do you experience? I'm curious to how it may compare to the simple partials I'm having on a daily basis (sometimes hourly basis). Thanks.
Click to expand...

When my partials were occuring all the time I would experience phantom odors and/or a weakness in my left arm and/or leg. With the most recent partials I would experience anxiety and twitching in my left arm pit.
 
Mine are frustrating because they affect my ability to do my job. Mine don't involve any part of my body doing anything (like twitching, etc.) but instead involve my brain refusing to be able to communicate with people for about 20-30 seconds. That's it, but it's enough to really be a problem, because I can't understand the words that are written in front of me, etc. when it happens. And, I'm a software developer, who needs to be able to be analytic and solve problems, communicate, etc. throughout the day.
 
For me, they are just deja vu feelings, but when they come over and over, I'm nauseated and have a hard time thinking. Once they finally calm down, I have a diffuse but very unpleasant headache and I'm super fatigued. I don't have any uncontrolled movements with mine at all. My doc said I'm barely on a therapeutic dose of meds and that we should up them--I"m wondering why he left me on a barely therapeutic dose when I had a recent dysrhythmia grade 3 EEG? I expressed concerns with the side effects of Topamax and that I would like to be on the least meds possible to control seizures but all the same I need him to let me know what the right dose should be!
 
I was afraid of lamictial originally but had an allergic reaction to Keppra after 4 days so I reluctently agreed to try lamictial. I haven't had any bad side effects other than blurry vision which seems to be getting better. If you haven't tried lamictial, maybe your doctor would be willing to switch you, if you think it might help.

My daughter in law was on Topamax for migrains for less than 2 weeks a couple years ago and she has never been the same since. She will lose her train of though in mid-sentence and word retreaval is very bad.

Please excuse my spelling errors. I am very bad at spelling and for some reason my computer doesn't have spell check.)
 
I've only been on 50 mg of Topamax and had some rough initial side effects, but they went away--he has me on 75, then up to 100 in 5 days. The side effects started again, but if they go away again I will be OK. I just want these @#$%# seizures to go away! :-)
 
MAB said:
Please excuse my spelling errors. I am very bad at spelling and for some reason my computer doesn't have spell check.)
Click to expand...

It's cool. I've noticed that it seems everyone on these forums has no ability to spell. :rock:
 
lindsayschu2 said:
I've only been on 50 mg of Topamax and had some rough initial side effects, but they went away--he has me on 75, then up to 100 in 5 days. The side effects started again, but if they go away again I will be OK. I just want these @#$%# seizures to go away! :-)
Click to expand...

I know what you mean about wanting them to go away.Because mine a just simple partials that no one is aware of but me, people don't realize how bad they can make you feel being chronically exhausted. I have felt better in the last 2 months than I have felt in a long time.

Last winter I got a sinus infection that just caused one partial after another for days. I didn't know they were seizures then. I went to my family doctor and begged her for a letter to my boss saying I needed time off from work because I was sick. I just wanted to stay in bed with the covers pulled over my head.
 
I know what you mean--And I worry they are doing me damage, or may lead to worse seizures. I've never had this much activity before, and after a head injury a year ago, all this rampant seizure activity is new and i have no idea where it will lead. I used to have an occasional simple partial, or complex partial, when I was young and untreated, but these strings of SPs is totally new. I'm so glad this forum is here, with so many supportive people!!!
 
lindsayschu2 said:
I know what you mean--And I worry they are doing me damage, or may lead to worse seizures. I've never had this much activity before, and after a head injury a year ago, all this rampant seizure activity is new and i have no idea where it will lead. I used to have an occasional simple partial, or complex partial, when I was young and untreated, but these strings of SPs is totally new. I'm so glad this forum is here, with so many supportive people!!!
Click to expand...

I worry about the damage too. I had an MRI 3 1/2 years ago when I had a stoke (the cause of my seizures). I'm going to ask my neuro when I see her in Feb. if she thinks I should have another MRI to see if there is more damage caused by al the partials.
 
I've had simple partials for 3 1/2 years but was only DX'ed in October. Since I started lamictal I have only had 1. That was on Nov 7. My previous neuro did an EEG and when it didn't show anything he treated my symptoms as if they were transient ischemic attacks since so many of my partials involve my left arm and/or leg feeling weak.
I now know the seizures started the day after the stroke.

I hope she doesn't increase my meds. I seem to be doing well on 150 mg of lamictial. The last time I talked to her on the phone she mentioned increasing it another 25mg but I prefer to stay as low as possible. Maybe she will order another blood test in Feb. to see what my levels are.
 
Hmmm . . . Well if Topamax doesn't do it, maybe lamictial is worth considering! Glad to hear yours are under better control.
 
It was 3 weeks yesterday that I began to reduce my dosage of Keppra from 1000mgs a day to 500. A week ago I started having auras and woke to a bitten tongue. Even though my dr had told me "You can stop completely" I was scared. He said "If it makes YOU feel better go slow" Well I'm glad "I WENT SLOW" or I might be in big trouble right now.
Another example of doctor's not really knowing about e, as well as, everyone is different. YOU have to listen to YOUR body!
The other reason I went back on my reg. dosage is that I won't have insurance till Feb.1. If I would have a seizure I'd be SOL!
M
 
I have Simple Partial Seizures, but I don't get a warning sign. Something clicks 'off' with my brain and body and I either jerk or/and fall.
 
If you are falling, to me that doesn't sound like a simple partial, maybe a complex partial.
 
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