Simvastatin, cause Seizures

[valeriedl]

Good neuros are hard to find. I never liked the neuro that treated my seizures as TIAs. He exposed me to drugs I didn't need and one of them cost me over $300. per month because my insurance company refused to cover it.

I really love my neuro. During our visits we talk about all the things that are going on. Why I could be having a good bit of seizures, usually do to stress or possibly other things, or if problems I might be having that don't evolve seizures. If I'm having unusual things that are happening that could be a side effect of one of the meds that I'm on he will explain it to me. If I want to get off the med he will do it. I'm on a great deal of meds at high dosages right now. He's always trying to lower the dosages and is currently trying to get me off of one of the meds completely.

When I first started seeing my neuro I'd see his physicians assistant every few visits. The woman was a real b****, and that's the most polite word I can think of to describe her. She didn't listen to a word that I had to say, she really didn't care what was going on - she already knew it! All she did was bump up the dosage of my meds. If I was having a good deal of seizures her answer was always "Because I wasn't taking my meds". Everyone in the world knew I took my meds! On my last visit with her I blew up on her in the office, and at the front desk. I told them that I was never going to see her again because of the way she treated me and I haven't.

 

[Bidwell]

Oh Valerie, I ALWAYS envy you your neurologist. I remember when he actually called you up with test results. And I also often remember this awful physician's assistant. When I got back home from my VEEG I found out my neurologist had disappeared, was no longer in the data base of the the medical organization where I saw her so I could not even email her. As far as her availability to read the EEG??? And her assistant mocked me in ways too complicated to recount, also lied, also misinformed, etc. I discovered this disappearance on the 18th, had a probable seizure, and various other stress related miseries -- the fallout is ongoing. The good news is that my primary care doctor's office is able to shepherd me through some rough times and go to bat for me. The bad news is that I am still such a mess.

 

[valeriedl]

I must brag about my neuro a good bit Bidwell! I'd be more than happy to share him with you if you'd want to make the drive! His PA wont even look at me when I'm in the waiting room if she sees me because of the way I blew up on her in the office that day.

There is only one bad thing, if you want to put it that way, when he calls me about stuff. He has a very strong foreign accent and it's almost impossible to understand him over the phone. My husband has to get on with me so we can interpret him!

 

[Bidwell]

Oh lord, I can see the two of you trying to figure out what is coming out of the phone. But, heck, he is a real gem!

 

[Ruth]

After about 2 months I stopped getting them because they weren't helping at all. Once I stopped my seizures decreased dramatically but I the problems with my back stayed the same. That's when I put two and two together and realized that the steroids were what was causing the seizures.

Valerie, I have real bad back problems, too. I have a fractured back and some fused vertebrae and osteoporosis.

My doctor wanted me to get the steroid injections for my back. I asked ;my doctor what is the worse side effect. He told me I could get paralysis. I didn't think about my seizures although I should have.

I decided against having the steroid injections because I didn't want the paralysis.