So happy!!! :)

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RainbowBrite

RainbowBrite

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Okay, so I know this sounds *totally* lame, but I am sooo excited because the first outpatient neurologist I saw takes my new insurance (or so says a couple of his listings online..)!!! I may not have to suffer with the current incompetent overscheduled doc!! The first neurologist actually took the time to listen to me and didn't doubt my complaints and feelings based on co-occurring illnesses :) So, Monday I have to call his office and see if they really do (hopefully!) accept Medicare. I'm praying they do because dragging along with the doc I'm seeing now is so tiring and my means of transportation to these appointments doesn't mind taking me to the first guy because she trusts him already (saving me the grief of convincing her [she's my mom] changing docs is a good thing). Ah. What a relief. Just the idea of the possibility is a relief, but I know I shouldn't get my hopes up. Anyways, I figured I should share potential good news since I usually end up venting on CWE, lol. :woot:
 
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That's great news. Fingers-crossed that this new doc comes through. Anytime you can lighten the "hassle-load" it's a wonderful thing.
 
Happy for you! Getting just one hassle out of the way can make a huge difference when it is something this important. When I went to a new/competent nuero a couple of months ago it made all the difference in the world. I finally got out of denial and have had a different approach and healthier attitude. AND, found this place which has been great! All the best to you.
 
The neuro does take my insurance and luckily had a cancellation for this Thursday. It's good that they just had a cancellation, otherwise I would have had to wait until September 2nd. Will let you guys know how it goes :)
 
Well, the appointment went well. He definitely wants me to get a VEEG but he is leaning towards the PNES side diagnosis (relieving yet somewhat frustrating). He unfortunately doesn't have any of my records with him due to the other neuro not sending them over yet. He made it clear that if it *is* PNES that he doesn't think I'm "faking" or "doing it for attention" and actually had recommendations for specific therapies that might help it. My mom was actually understanding of the possibilities and didn't get all hyped up into thinking I'm a "nut case" in the event that it is PNES. All in all it was helpful, but does make me a little sad because even though I know I'm not faking or "doing it for attention" or have any control over it, it's not like everyone will understand that if they don't find refractory epilepsy while I'm in the EMU. He adjusted my Depakote to the ER version so that I at least have more even levels. Now I just have to wait for the VEEG scheduling people to call me back...
 
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