Rae1889
Veteran
- Messages
- 2,655
- Reaction score
- 9
- Points
- 163
I'm really tired guys. My seizures are right back at square one. I've had one monday and one yesterday *tonic clonic* and before that I can barely remember.
I have smaller seizures daily and I haven't been sleeping because of it. Melatonin hasn't been working so well as I lye in bed with my brain going haywire with thoughts. My wedding social is tomorrow, and I'm so nervous. My guts are churning. I know everything will be fine, but I'm not one to put on parties.
I had to give the DJ a list of songs he can't play *because they trigger seizures* and what he can't do with the light show *strobes and strong patterns* and I'm hoping he remembers. It feels like my stomach is holding my heart right now. I'm scared.
I have had my seizures in the morning for sometime. Usually between 7 and 10, around the time I wake up. I have come to realize its my alarm clock. For as long as I can remember, I have hated alarm clock. When I wake up to them, my heart pounds. Sometimes for an hour. I don't like being startled awake. Ideally, I want to wake up to kisses and cuddles, but If Chads not home *he works earlier than me* I'm out of luck and have to use that alarm. If its not loud, I don't wake up to it. Music I'm not taking a chance with as I don't usually wake up to it, plus with songs being able to trigger me now...
What can I do? I'm so lost. Square one should feel so familar that I should be able to deal, but I hate it being back here.
I have smaller seizures daily and I haven't been sleeping because of it. Melatonin hasn't been working so well as I lye in bed with my brain going haywire with thoughts. My wedding social is tomorrow, and I'm so nervous. My guts are churning. I know everything will be fine, but I'm not one to put on parties.
I had to give the DJ a list of songs he can't play *because they trigger seizures* and what he can't do with the light show *strobes and strong patterns* and I'm hoping he remembers. It feels like my stomach is holding my heart right now. I'm scared.
I have had my seizures in the morning for sometime. Usually between 7 and 10, around the time I wake up. I have come to realize its my alarm clock. For as long as I can remember, I have hated alarm clock. When I wake up to them, my heart pounds. Sometimes for an hour. I don't like being startled awake. Ideally, I want to wake up to kisses and cuddles, but If Chads not home *he works earlier than me* I'm out of luck and have to use that alarm. If its not loud, I don't wake up to it. Music I'm not taking a chance with as I don't usually wake up to it, plus with songs being able to trigger me now...
What can I do? I'm so lost. Square one should feel so familar that I should be able to deal, but I hate it being back here.