Hi,
I am new here but have been reading for a while. In August, I gave birth to an otherwise healthy boy who started having convulsions during his sleep when he was about 2 or 3 days old. With each convulsion, all four of his limbs would twitch for 20-30 minutes. This was happening up to 4 times each day.
My son's MRI was fine as were all of the numerous blood tests they performed on him. His EEG, however, was abnormal, and he was prescribed phenobarbital, which he is still taking, nearly 4 months later.
The convulsions have changed over the last 4 months and now only seem to affect his hands, particularly his right hand. The convulsions only happen while he is asleep and are lighter and less frequent now (about every 1-2 weeks instead of every day). He has had some episodes of sleep apnea, which the doctor said is likely seizure activity, and he also had convulsions after his most recent vaccines.
Our doctor seems like a good one but I don't always have time to ask everything on my mind. To start with:
1. What kind of seizures might my son be having?
2. Why do we need to do an EEG each time we adjust his medication?
3. Does anyone else have a child who fits the same pattern as mine? Can you tell me about your journey?
4. Should I be concerned about future vaccines?
And a biggie:
5. Do seizures cause damage to the brain?
Thank you so much for any insights you can offer. This is all very new and confusing to me.
I am new here but have been reading for a while. In August, I gave birth to an otherwise healthy boy who started having convulsions during his sleep when he was about 2 or 3 days old. With each convulsion, all four of his limbs would twitch for 20-30 minutes. This was happening up to 4 times each day.
My son's MRI was fine as were all of the numerous blood tests they performed on him. His EEG, however, was abnormal, and he was prescribed phenobarbital, which he is still taking, nearly 4 months later.
The convulsions have changed over the last 4 months and now only seem to affect his hands, particularly his right hand. The convulsions only happen while he is asleep and are lighter and less frequent now (about every 1-2 weeks instead of every day). He has had some episodes of sleep apnea, which the doctor said is likely seizure activity, and he also had convulsions after his most recent vaccines.
Our doctor seems like a good one but I don't always have time to ask everything on my mind. To start with:
1. What kind of seizures might my son be having?
2. Why do we need to do an EEG each time we adjust his medication?
3. Does anyone else have a child who fits the same pattern as mine? Can you tell me about your journey?
4. Should I be concerned about future vaccines?
And a biggie:
5. Do seizures cause damage to the brain?
Thank you so much for any insights you can offer. This is all very new and confusing to me.