Sometimes I wake feeling like poo

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

Teeny

New
Messages
8
Reaction score
0
Points
0
Ok, So I have simple partial seizures with secondary generalization.
Somedays I wake up feeling like I got no sleep at all. I will have a small headache and feel drained. Is it possible that I had a seizure in my sleep? No bumps or bruises, just drained. Sometimes I have pressure in my head or I just feel like poo. I will feel crabby and tired all day long. I don't want to do anything. Not sure if it is me or a seizure. I am on lamictal now. Just started it 2 days ago. I was on Topamax. Had horrible side effects that I dealt with for almost a year. Does any one else have this?? Also, sometimes before a seizure or even during, I have rapid heatbeat. Anyone else??
 
You might be having subclinical seizures. They are also called encephalograpic seizures. They are really tiny, and can't be felt, but nonetheless they can have a cumulative effect on your brain and make you feel like poo. I am pretty sure that I was having them a lot. Hard to know, but it could have been 30 or 40, or more, per day and throughout the night as well. Since I started on the vns 10 days ago I have felt waaaay better overall, and I believe it's because the frequent little jolts of electricity have stopped or greatly reduced the subclinical seizures. My neurologist agrees with that, by the way, so it's not just my own supposition. For whatever reason, I'm feeling better and sleeping better than I have for years and years. It's nice and I wish I had gotten the vns a long time ago. Maybe something you might consider talking to your neuro about. Cheers!
 
Ok, So I have simple partial seizures with secondary generalization.
Somedays I wake up feeling like I got no sleep at all. I will have a small headache and feel drained. Is it possible that I had a seizure in my sleep? No bumps or bruises, just drained. Sometimes I have pressure in my head or I just feel like poo. I will feel crabby and tired all day long. I don't want to do anything. Not sure if it is me or a seizure. I am on lamictal now. Just started it 2 days ago. I was on Topamax. Had horrible side effects that I dealt with for almost a year. Does any one else have this?? Also, sometimes before a seizure or even during, I have rapid heatbeat. Anyone else??

OMG YES! This is almost exactly how I feel sometimes and lately I have been feeling this way a lot...I'm going back up to taking 1,250mg of Depakote a day instead of 1,000mg...but yeah I'll wake up feeling like crap and I'll get these annoying headaches that feel like tension headaches or I'll get this odd "pressure" sensation in my head...well actually I have it all the time but when I have the headaches it's more noticeable...then again I do have a 3x4cm arachnoid cyst in my brain (right temporal lobe) so that itself is putting pressure on my brain already...I think I am pressure sensitive and extremely photo sensitive when I'm tired or sick...

and YES with the rapid heartbeat thing...I know what this is like and it scares the crap out of me...I'll be trying to go to sleep and will be laying there in the process of falling asleep and BOOM it hits me...suddenly I'll feel like I'm suffocating/hyperventilating and feel like I'm falling or on a merry go round and I'll jump out of bed feeling disoriented and scared ****less and sometimes like I'm gonna puke or **** myself...pardon the language but it's awful...it mostly happens when I am sleep deprived...which happens when I am manic and just can't sleep...but I think I realize now that I have stay with the higher dosage even if I hate it...

I also get very itchy out of nowhere sometimes usually followed by feeling hot and sweaty...or I'll wake up in a puddle of sweat and get cold chills...never mind the sudden daily spells of confusion and what just happened??? lol
 
Last edited:
yep I feel like poo just about every morning. also have headaches nearly all the time. also have the heartbeat thing off and on.
 
Teeny

I had a seizure last night and one this morning, not bad mind you, not bad at all. I am just up, yes it is possible you had a seizure of types in your sleep just because you do not injure yourself does not say you are dreaming it. I have the headache and just feel lousy not wanting to do anything. Me the rapid hearth beat usually happens during a seizure and holding my breath and when I start to come out of it I gasp for breath or so I am told. The worst part for me is how hot I do be after a seizure. We all have different quirks but we will always find some in common and its bloody annoying. I suppose that is all part of the fun, although I have not found the fun yet.

Try and make yourself keep going, the truth is that's crap but we have to try.
 
Yes I totally relate--I had months of that before I realized I my meds weren't doing it and started having simple partials during the day and complex partials at night that woke me. An EEG confirmed lots of subclinical seizures, and I do believe I was having simple partials at night (though no real proof of that, just that I was having so many simple partials in the day it stood to reason). I ended up getting myclonics too that added to my endless nights and I have sleep apnea too but noticed that I don't have as many bad 'pooh feeling' days since we increased meds a couple of weeks ago. I could have written your post! Hang in there!
 
Back
Top Bottom