Sound Sensitivity?

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

PC1989

New
Messages
15
Reaction score
0
Points
0
I'm not sure if it's just me or if everyone experiences sound sensitivity. I've never had - to my knowledge - a blackout seizure due to sound.

Example 1:
I was at a Trader Joe's (grocery store) and I was very tired. When Trader Joe's employees need an extra cashier they ring a bell. When this bell was rung I felt the vibration in my body and I collapsed because of my legs giving out. I didn't lose consciousness and I held myself up with the grocery cart. I kept feeling the vibration for a few minutes.

Example 2:
My boyfriend made a loud noise by slamming a book closed. I was startled and froze for 30 seconds, staring? He asked me if I was alright and I told him not to make loud noises because I can feel them.

Example 3:
Whenever our neighbors slams a door, a door is closed loudly, something is dropped, or a loud car zooms down the road, I feel the sound's vibration. Sometimes it's painful and causes myoclonic jerks.

Anyone else ever have this happen?
 
Some folks have "startle epilepsy" or "reflex epilepsy" -- seizures in reaction to a sudden stimulus. The most common form is photosensitivity, but the stimulus can also be a sound, touch, smell, etc. Maybe that's what's going on with you?
 
I can pinpoint a handful of noises that just flat out drive me nuts- since this sensitivity has been of relatively recent origin I've tended to associate it with either a phenytoin thing or an epilepsy trigger thing in general, although I've never found a definitive link between a seizure event and these sounds.

the sounds are all of a clicking or popping nature and are vocalizations, coming from a person's mouth
 
Back
Top Bottom