Hi, I am new. My 7 year old has absence seizures and a thalamic glioma. Since school is almost over, I am considering stopping his AED'S and changing his diet. Anyone with experience with this? I assume I need to taper off the meds. Neuro isn't very supportive, but my kid has been on 4 meds already, and seizures aren't completely controlled. Since I put him on a gluten-free diet a few months ago, my husband and I were discussing that we think he is having less seizures, and is making strides in overcoming balance and coordination issues.
Neuro's only want to prescribe meds, and the side effects are severe for my son. Both his younger brother and myself are gluten intolerant, so we think its worth a try. We are planning on eliminating milk as well, as he has had an ongoing problem with constipation and encopresis.
Since we don't have the support of the Neuro, does anyone know a how to taper off Topamax and Lamictal? Will he be at risk for having a tonic clonic? I have heard that this can happen.
Neuro's only want to prescribe meds, and the side effects are severe for my son. Both his younger brother and myself are gluten intolerant, so we think its worth a try. We are planning on eliminating milk as well, as he has had an ongoing problem with constipation and encopresis.
Since we don't have the support of the Neuro, does anyone know a how to taper off Topamax and Lamictal? Will he be at risk for having a tonic clonic? I have heard that this can happen.