Hello there!
I feel like my journey with seizures has officially begun although I have been struggling for four years. After an untreated sinus infection I was hospitalized with a facial grimace and convulsions.
They worked me up for everything from a stroke to breast cancer and because the EEG, CT and MRIs were clear they determined that I had conversion disorder even though I have a loving family, supportive and wonderful husband and no traumatic history.
I had just returned to work after my first child and they said it was stress and to not have anymore children.
The convulsions calmed down but never went away and I would have episodes from time to time. They always involved the right side of my face and weakness on the left side of my body with slurred speech that went away after 1/2 hr.
I now have 3 children and five months ago the episodes started coming on daily and generally 3 - 5 per day except now my whole face and head would nod off as if I was going to sleep after my facial grimace, vision blurring and then I would have some small convulsions all without losing consciousness.
Finally we have seen our 5th neurologist at an epilepsy clinic and for the first time ever I am on anti seizure rx! Keppra on a low dose 500mg twice daily to start. I still have seizures, especially connected with my menstrual cycle but they are reduced by 2/3rds!
I know this is going to be a long haul as they do more tests but I am hopeful!
I can only imagine that there may be a day that I am seizure free!
I am just soooooooo relieved that they aren't just saying I'm stressed anymore.
It's nice to have a forum to talk about this! Goodness knows my family has to deal with it enough!
I feel like my journey with seizures has officially begun although I have been struggling for four years. After an untreated sinus infection I was hospitalized with a facial grimace and convulsions.
They worked me up for everything from a stroke to breast cancer and because the EEG, CT and MRIs were clear they determined that I had conversion disorder even though I have a loving family, supportive and wonderful husband and no traumatic history.
I had just returned to work after my first child and they said it was stress and to not have anymore children.
The convulsions calmed down but never went away and I would have episodes from time to time. They always involved the right side of my face and weakness on the left side of my body with slurred speech that went away after 1/2 hr.
I now have 3 children and five months ago the episodes started coming on daily and generally 3 - 5 per day except now my whole face and head would nod off as if I was going to sleep after my facial grimace, vision blurring and then I would have some small convulsions all without losing consciousness.
Finally we have seen our 5th neurologist at an epilepsy clinic and for the first time ever I am on anti seizure rx! Keppra on a low dose 500mg twice daily to start. I still have seizures, especially connected with my menstrual cycle but they are reduced by 2/3rds!
I know this is going to be a long haul as they do more tests but I am hopeful!
I can only imagine that there may be a day that I am seizure free!
I am just soooooooo relieved that they aren't just saying I'm stressed anymore.
It's nice to have a forum to talk about this! Goodness knows my family has to deal with it enough!