Hi Everyone!
I was just wondering if anyone has found or knows of any websites or places where partners/family members/ friends or carers can find support (in my case I was wanting to find some information, advice etc for my partner).
I have only had epilepsy since mid 2012 and we have been together since 2004, so this epilepsy bs really put a stick-in-the-spokes so to say for us. I am all cool because I dont remember the seizures so most days I dont even think of myself as "an epileptic".
BUT I will say that I knew from the start that it bothered my husband and I just thought he was being nice, but othertimes I just thought he was being over the top. Then I sort of started getting worried about him, hence my very first topic. After that everything seemed ok.
But since those few months a lot of things have changed and I am coming to realise that for our partners (and family, friends, carers etc) sometimes (maybe even most of the time) have a super hardcore time with this.
I know for sure in my case, this affects him way more than it affects me, and it affects him really really badly.
So I did a random google search of "partners of people with epilepsy" and I found this research
http://www.sciencedirect.com/science/article/pii/S1525505012007226
which is refered to on many other websites as well,
where it states that 8% of partners living with epilepsy have PTSD!! Another 44% have subclinical levels of PTSD!
I mean what the hell is that, this is a seizure I CANT EVEN REMEMBER HAVING and my partner on the other hand is so out of it he might have PTSD?!?!
So anyway, without telling him I looked up information regarding Post Traumatic Stress Disorder, and I went onto the Beyond Blue website (which is a highly regarded info and support for mental illness website here in Australia). And without telling him what the questionare was for, I, out of the blue went though the yes no questions for PTSD with him, and sure enough it doesnt look good.
So in short I want to know what we should be doing for our partners?
Where can they go for support?
Is there forums just for them?
I mean even you Bernard (or anyone else in in the same situation), what did you do, where did you go, where do you go now, what do you do today, as someone who cares for or is the partner/ family member of someone with epilepsy?
Or anyone out there with epilepsy, what do your partners do to cope??
Thanks in advance everyone, have a great weekend
I was just wondering if anyone has found or knows of any websites or places where partners/family members/ friends or carers can find support (in my case I was wanting to find some information, advice etc for my partner).
I have only had epilepsy since mid 2012 and we have been together since 2004, so this epilepsy bs really put a stick-in-the-spokes so to say for us. I am all cool because I dont remember the seizures so most days I dont even think of myself as "an epileptic".
BUT I will say that I knew from the start that it bothered my husband and I just thought he was being nice, but othertimes I just thought he was being over the top. Then I sort of started getting worried about him, hence my very first topic. After that everything seemed ok.
But since those few months a lot of things have changed and I am coming to realise that for our partners (and family, friends, carers etc) sometimes (maybe even most of the time) have a super hardcore time with this.
I know for sure in my case, this affects him way more than it affects me, and it affects him really really badly.
So I did a random google search of "partners of people with epilepsy" and I found this research
http://www.sciencedirect.com/science/article/pii/S1525505012007226
which is refered to on many other websites as well,
where it states that 8% of partners living with epilepsy have PTSD!! Another 44% have subclinical levels of PTSD!
I mean what the hell is that, this is a seizure I CANT EVEN REMEMBER HAVING and my partner on the other hand is so out of it he might have PTSD?!?!
So anyway, without telling him I looked up information regarding Post Traumatic Stress Disorder, and I went onto the Beyond Blue website (which is a highly regarded info and support for mental illness website here in Australia). And without telling him what the questionare was for, I, out of the blue went though the yes no questions for PTSD with him, and sure enough it doesnt look good.
So in short I want to know what we should be doing for our partners?
Where can they go for support?
Is there forums just for them?
I mean even you Bernard (or anyone else in in the same situation), what did you do, where did you go, where do you go now, what do you do today, as someone who cares for or is the partner/ family member of someone with epilepsy?
Or anyone out there with epilepsy, what do your partners do to cope??
Thanks in advance everyone, have a great weekend
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