In the Cincinnati, Ohio Enquirer there was an article about a 9 yr. old girl who had surgery where they placed electrodes on her brain, then decreased her meds and over a few days a seizure occured and they were able to locate the focal point of her seizures. Has anyone ever had this surgery or knows anything about it? When we asked our Dr. he said it was an option but very risky.
Marian
Hi Execwife......
I think I spoke to you in a thread about my surgery...
I underwent what soundslike something similar or even the same as what your looking into for your son. I had my first operation on the 12th Nov which is where they placed grid electrobes on the surface of my brain, I then went up to the video monitoring ward where I was on 24 hour eeg and was monitored, I was taken off all my meds to promote seizures so they could be recorded, this went for a week, the following monday being the 19th Nov I was taken back to the operating theatre, where the grids were removed in the resection to remove part of my frontal and part of my right frontal lobes. The surgeon said I had the size of 3 match boxes removed....
It was 4 weeks ago yesterday.... And I am travelling well..... I havnt had a seizure yet so.... At the moment its all very positive and so far a success... going a month with no seizures is a success in my case in its self!!!!!!!!!!!! So I am so so so so so so so so happy so far!!!!!!!!!!!!!!!!!!
Keep patient..... make sure your happy and at peace with the information that is provided for you....Or ask for more.... there is no such thing as a silly question... just being silly for not asking... and if your not happy with the answer just ask again... because when it comes to decision time you want to be as well informed as possible....
So far there is no way i would take back my decision to have gone through the surgery..... plus I thought it was going to much harder then it was..... I think I told myself it was going to be much more harder.... So I was pleasantly suprised when it wasn't as bad as I had thought... I had some bad stages as It is to be expected but. I am still needing to take it really really easy.... still have to be aware when I am bending as if I bend to quickly you can become dizzy.... everyone gets different severities of that... I havnt been very bad right from the start. but I make sure just to be aware....
there was a young girl come in to have the same op as me 2 days before I went home... I have been talking to her mum and she is doing very well too!!
I hope all the testing goes well.... Its a drag sometimes but the more information the better the outcome will be for you son... so its all worth it in the end...!!!!
I will be thinking of you your family and especially your son!!!!!
Take care
Happy positive thoughts
Tate xx