Sz triggers

[trillium]

After you are exposed to a known seizure trigger, (if you are going to seize) would it happen right away or could your brain stay "jumpy" for a while and maybe have a seizure after a while?

 

[Nakamova]

Keep in mind that everyone's seizure threshold is different, and even for the same person it can be different at different times. And it varies depending on the individual and the trigger. But basically the answer's yes.

They've done tests that show for some people their brainwaves start to change many hours before they have the actual seizure. And there could be more than trigger involved. You could react to one trigger -- say, MSG -- and then be "jumpy" for awhile until another trigger -- say fatigue -- pushes you over the edge and you have the seizure.

 

[trillium]

But basically the answer's yes.

hmmm so basically the answer is maybe, maybe not but sometimes, and it depends on nothing in particular and not necessarily the same reaction twice in a row, just whatever your brain feels like doing.

Someone asked me this today and I gave them a maybe/ maybe not answer, but when they kind of gave me a "can't you give a more definite answer?" look, I wanted to check my info.

thanks

 

[epileric]

For me it depends, certain foods will trigger a seizure in about 15 minutes, other foods in about 12 hours.

I think it all depends on the trigger, the person & their specific sensitivities.

 

[RanMan]

Keep in mind that everyone's seizure threshold is different, and even for the same person it can be different at different times. And it varies depending on the individual and the trigger. But basically the answer's yes.

Everybodys trigger is different as wellas their "threshold".

A big trigger for just about everyone is fatigue.

Randy

 

[huskymom]

hmmm so basically the answer is maybe, maybe not but sometimes, and it depends on nothing in particular and not necessarily the same reaction twice in a row, just whatever your brain feels like doing.


Sounds like a trip to the doctors office :roflmao:

 

[trillium]

hmmm so basically the answer is maybe, maybe not but sometimes, and it depends on nothing in particular and not necessarily the same reaction twice in a row, just whatever your brain feels like doing.


Sounds like a trip to the doctors office :roflmao:

(yeah, I was diagnosed 31 years ago, I've heard it before, but when you give the answer to people without epilepsy, they don't understand how there is no definite answer) :banana:

 

[sandi]

2 yrs ago hubby and I went to Nascar race and were camping , I was feeling good with no idea I might have seizes still (I was told they were gone and I had panic attacks)
So feeling so good and it was Daylight we went down to see a concert I hadn't been to one since a Teen.5 hours later All seemed fine went to bed, But awoke less than an hour later thinking I had a Bad dream, I was so wadded up in the Sheets they were strangling me ! I was so disoriented , I paced, and roamed around in circles in the trailer not sure what to do then I remembered the Valium
So I took that and when settled went back to bed but continued to feel out of sorts and have visual problems the next day .
Hubby and I figured the only way I got that tangled was seizing.
Unfortunately he was exhausted and had a little 2 much to drink so other than briefly asking if I was okay he didn't notice.
I have always noticed it's not just one thin although that's all it takes to set it off, but sometmes it's cumulative

 

[RanMan]

Believe it or not, a trigger for a lot of epileptics (more than you would think) is the lighting at Wal Mart.

I've read so many posts on this board and others where ppl have experieced going into a seizure or aura or got a headache after being at Wal Mart. I don't know why it happens but it does.

I had a seizure there after 28 years of total control. When I originally posted that experience in 2004, I was surprised at the number of replies that I received.

Randy

 

[Loopy Lou]

My main triggers are stress and tiredness, but it's usually after it's built up a bit where i would actually have a seizure.

Things such as panic, hyperventilating and certain patterns of blue and red can give me partial seizures, usually pretty quickly.

 

[sandi]

Yea Well I could write a book on the lights in Walmart, as soon as I hit the door inside it is as if you lit me on fire , the entire sensory thing starts I actually avoided them for 8yrs, preferring instead to go to the Dingy Kmarts.
Most of the time I am okay in them now or don't get serious problems I wear the Darkest sunglasses ,Take Xanax , and keep my vision lower looking at the dogs reaction and only peeking a aisle or 2 ahead .
If not for the Service Dog I run into to much stuff .
After the sensory stuff I can quickly get into the disoriented stage at that point I wander in circles not identifying people or what I need. If I am looking for my hubby he could be right in front of me but I can't really identify him.
I do always so far remember the dog! Don't know why or she remembers me and it's comfortable. I've taught my dog to find the Door or to find Dad and she helps out a lot When I feel funnies coming on.
I think it has to do with blink rate of the lights but it's undetectable to the Eye
much like a video game.Other Store Like Home Depo will eventually bother me but only if I am there a long time. Oh and I hate that I can't go into the Christmas store anymore, I can't even decorate much either. Bummer It used to be my favorite.

 

[epileric]

Someone I knew whose seizures were triggered by any sort of fluorescent light wore polarized yellow lenses to combat it. She said they really helped a lot.