T/C & still awake??

[JaneP]

Has anyone ever heard of having a T/C seizure and seeing & hearing & feeling everything going on all the while? I never knew a person could be conscious during one! -At least I never have. Awhile ago I started getting a C/P seizure that kept intensifying. I've found that if I lay down it won't progress to the point of me blacking out & shaking, etc. But this one (never before & never since) had me witnessing my own T/C seizure. :/
HUH?? I never heard of that happening. The only thing I can chalk it up to is.....where are you Eric, I'm up for another major debate *giggle* .....my body finally rebalancing itself to the point where they're not as severe (I didn't black out like always happened before at that point). This happened several months after I started using heavy anti-oxidants (grape seed extract, mango stein juice and calming herbs like lavender oil). These ones I mention -and many more- help to, among other things, clean all the built up preservatives, toxins and what-not out of your system. (I know this all sounds foreign to those not entirely in tune with how this Eastern stuff works....bear with me)
This is the only logical explanation as to what happened here. Ever since then, when I do get a C/P I don't black out from them, and wind up exhausted due to what a full blown T/C involves.

 

[N Sperlo]

I believe anything is possible, but I'm confused. Reading comprehension isn't too great, so its a bit hard for me to put everything together.

If you could, divvy it up. That will help me understand because I'm interested.

1. I want to know exactly what you experience.
2. Tell me how its different from before.
3. What remedies are you using?

I find this topic engrossing.

 

[qtowngirl]

Has anyone ever heard of having a T/C seizure and seeing & hearing & feeling everything going on all the while? I never knew a person could be conscious during one! this one (never before & never since) had me witnessing my own T/C seizure. :/

there are many aspects to a complex partial seizure, regardless there is some impairment of consciousness. with a generalized tonic clonic there is, regardless of how long it lasts, no consciousness. the few seconds that a complex is 'just' starting to turn tonic clonic one is still somewhat 'there', but rarely, if ever, able to hear and feel 'everything going on.'
what was it you were witnessing? it could fit into a variety of generalized seizures, such as myoclonic, tonic or atonic. only loss of consciousness is the tonic (skeletal muscles will suddenly tense) and is fairly quick in comparison to a t.c.

This happened several months after I started using heavy anti-oxidants as to what happened here. Ever since then, when I do get a C/P I don't black out from them, and wind up exhausted due to what a full blown T/C involves.

this could also be due to a mixture of your epilepsy medication and heavy anti-oxidants. they can cx how your meds metabolize and possibly wreak havoc on the body, anti-oxidants can be useful but need consideration when mixed with any med, epilepsy especially. neuros and epileptologists don't want a complete list of what we take, from painkillers to vitamins, for no reason. jane i'd be really careful with that stuff, it can have a huge effect with meds and not always positively.

winding up exhausted, but still with it, could be due to moving around (ie: running, jumping, bending etc.) without knowing it, and muscle spasm/tight muscles during the c.p. ... partials carry a TON of possibilities re: movement.
as there is a partial loss of consciousness there is rarely much memory, if any, of everything that just happened. you may be tired, sore etc. but not due to a tonic clonic, even if afterwards there are a few similarities.

 

[JaneP]

Sperlo,
I felt as though my C/P seizure was about to turn into a grand mal where I always black out & am then told I start shaking like heck, sore, tired, and confused after. This time I started going into a G/M but didn't lose consciousness. (NOW I see why people who have never seen one are startled by them!) I could see & feel & hear everything around me. I just never had that happen before or since. I was laying there looking at the ceiling in the washroom while this was going on fully awake.

qtown, I don't think it has anything to do with my herbs because I've been into that stuff (learning AND using) for over 20 years and this only happened recently.
I just thought though.....it's rather interesting (funny?) how people -especially medical personnel- always say, or at bare minimal imply, it's always the HERB that interacts with, or messes up the DRUG and never the possibility of it being the other way around. I fully believe that science is NOT better than nature. MAN is the one messing up and interacting with NATURE, not the other way around. Someone already gave us in a state He knew was better than anything we could do. (At least that's the way I see it.) Why would GOD have left anything partly finished leaving us to fend for ourselves intentionally letting us get sick and wind up crippled, etc. from all these illnesses, etc. until we could figure out through millions of years how to fix the issues? I'm not sure about you, but that goes against everything I've ever been taught. If we were meant to be sustained on drugs, Someone would've made pills grow on trees for us.

 

[qtowngirl]

unfortunately as/when our metabolism changes, which is common over 20 years, it can change the effects of many things in our body such as tiredness, weight gain, and improper ingestion of medications, herbs, vitamins and the like.
not to say that medications never affect reaction of herbs, however, and again unfortunately, epilepsy medication working to its best ability triumphs importance over herbal care, mainly due to its high, and life-threatening risks, no?

now, and take this as you will, it's an open forum- i am an atheist, and greatly feel in opposition. we are both able to think/speak how we choose, so (in short) my opinion is that for the most part (with a little fate), what happens to us is decided by us. if myself i found out two things i was on were interacting, and it caused my seizures to lengthen or increase, that would be priority. i want to live as normal as possible (including brain surgery) and if something i'm 'choosing' (b/c epilepsy is not a choice we make) is making it worse, it needs to be looked at, in detail and right away.
this is not saying that science and the medical system rule, that they're ALWAYS right, but there is actual proof of their findings/facts/figures from over a century of study, if any of these are proven to be taken care of by any type of god let me know where to look to see the proof. IMO (referring to our situation) if there is a cause that has the ability to mess something up, the life-threatening and incurable disease of EPILEPSY is messing up MAN.

either way keep us posted tho k and best of luck.

 

[JaneP]

Well not to turn this into a theological debate, but did you know that if the laws of thermodynamics & electromagnetism were only 2% weaker hydrogen would be the only stable element & matter would be totally disorganized? If those same forces were just instead 3% weaker hydrogen itself would be unstable & no hydrogen containing compounds (like water) could form & no life would be possible? Not to mention, there's a site called "my healing kitchen" "eat lots of sweet potatoes" that (ignore the first line if you want where it mentions GOD creating everything) shows how so many foods kind of look like what part of our body they help? (I've tried a couple and WOW! HOW TRUE! I thought to myself.) In retrospect, and out of curiosity, do you think all this and more of such precision happen all totally out of absolute coincidence? (By the way, on that site it shows how a walnut looks just like a little brain -even split down the middle by an apparent "hemisphere". Science have shown that walnut actually help support over 300 electrical transmitters in our brain.) I'm experimenting with those at this time!
Like I say, not turning this thread into a theological -or lack thereof- debate. Just couldn't resist asking & pointing this walnut thing out.

 

[masterjen]

Some focal motor seizures can look a lot like tonic-clonic seizures, and the effects on the body, as well as after-effects, can be similar. Seizure type: focal motor complex partial seizure.

 

[Crash]

Hi JaneP,my last seizure was exactly as you describe.After years off tonics this one came in the post.Still convulsing but perfect vision,hearing and been able to remember everything.

After 20 odd years,im not sure how much i care,or if i care? But i think using certain painkillers contributed to this one.It was like i managed to fight off a tonic,which i have never managed before,Im glad you brought this up and wish you well,pm me if you want to discuss it further,take care.

 

[petero]

It's my understanding that a seizure can be "broken" so that it turns into a psychotic seizure, such that one is "aware" of things going on, but that the things are not of a normal perception.

As a matter of fact I'm pretty sure this happened to me once when I was on a few pain killers and knockout drugs after what I'm chalking up to a sleep seizure. Taken by ambulance from home at which point my "consciousness" got KO'd, but I've had faint recollections of "things" since then (two years ago now) which I have organized into thoughts of what must have been a psychotic seizure period due to over-stimulation and the levetiracetam I was taking at the time.

I think the over-stimulation of ambulance transfer and the chaos of an ER, people, noises, etc. just "broke" me into a psychotic period. But my thoughts regarding the period have not been pat and sensible by any regard. It hasn't been as though the experience was just like any other experience at all in that it was not within a normal perceptual sense. More like a handful of tiny Roy Lichtenstein paintings that have been flipping through like rifling through a deck of cards, not even quite in a chronological order that I can tell, along with associated but disjoined emotional states along with them that rifle through also, and have been slowly "aligning" with what have been seeming to be like the correctly adjoined "picture panels". And it has not been a pleasant experience.

I'm of a religio-theological mindset regarding seizures. I have come to believe that the neural passageways that are experienced in many, for example, monks who meditate through self-immolation, are related to a neural pathway experienced during seizures. I'm not comparing epilepsy to psychic seizures that can be brought about psychologically. Rather, I'm saying I believe that some/many/all humans have more control over neural pathways than we think, and that since epilepsy already "jailbreaks" our brains into slipping through neural pathways we may be prone to even more slippage.

I've even pondered about religious events through history and how they may be related to epilepsy and seizures. I don't have any doubt that there can be waking events during ictal periods. Ones cycling period may be very rapid also. For example, we ALL have "waking periods" during our ictal periods, but it's just that our ictal periods are farther apart (days, weeks apart, months if we're lucky) meaning our cycle is also farther apart, but there can be very rapid cycling also which could be confused with "awareness" during a seizure, but that there may not be any awareness at all!

 

[RobinN]

I believe that any and all things are possible when it comes to the brain.
They are still learning... and yet they forget to ask those that are experiencing them.
I believe that you can retrain your brain... yet having that BELIEF is a large part of this happening.

 

[JaneP]

That's what the term "holistic" refers to.....mind, body AND spirit. Most Dr.'s only look at the body & try to treat (better word might be suppress) symptoms which never addresses the CAUSE of the problem. That's what, in retrospect bugs the heck out of me when I hear "Your medication level was too low. That's why you had a seizure." Far be it for me to argue "modern" medicine with an M.D. but something's wrong there. No M.D. ever tells his patients: "You're having heartburn because you're Rolaids level is too low." or "You have an aspirin deficiency. That's why you're having headaches." or "You have cramps because your Midol level isn't high enough." Well, going by that logic and scientific explanation, you don't have seizures because your A.E. drug level is too low. There is something at the heart of what's causing the issue that needs to be addressed and CORRECTED or nothing will get better. (I met with an organizer of the local E.F.A. and told her this, and she just shook her head and looked at me like WOW! and said "I never thought of it that way before! Makes perfect sense now that I think about it!")

 

[petero]

@Jane to the defense of doctors - they aren't holistic practitioners

and that's what doctors are trained to do - to treat conditions with medicine

if you want a holistic lifestyle therapist - that's an entirely different field

when involving oneself in the field of medicine one should expect to be given medicine as a suppressive or curative solution

there is no consensus I know of as to why seizures exist, so there's little consensus on what to do to avoid them, other than the obvious: meds, vitamins, diet, gyration, exercise, clean lifestyles...

 

[petero]

LMAO

I could edit it but I had to leave it in

"gyration" is supposed to be "hydration" - brain fart I guess

LMAO

 

[alice123]

Well I had a seizure once or 2 times in my sleep where i woke up seizing and then went back to sleep. Doctors have told me its impossible to have a seizure whilst your aware! Still have not got that far in the diagnoses!!!

 

[petero]

..Doctors have told me its impossible to have a seizure whilst your aware!!

I'd have to disagree!
I say it IS possible, but that ones level of awareness would be totally skewed and psychotic.
But - technically, "awareness" does assume a level of comprehension and reactivity I guess... which would not be there during a seizure

so, no, there isn't a way to go "oh wow, I'm having a seizure! I can feel this seizure! I'm seizing! oooh!"
that type of awareness? definitely not
more along the lines in which one would be able to "comprehend" a record album spinning (one comprising your life and current events) and then dragging the needle across the album radially as it's spinning... and then "comprehend" the record. not a chance.
you may be able to hear blips of songs depending on how fast the record is spinning (which could be related to the frequency level of an EEG, etc. - by the frequency of rotation), you may be able to make out who the artist is, but there would be no comprehension, hence no "awareness"

so I guess overall I agree

:soap:

lol

 

[alice123]

I guess i was pretty out of it but I was still aware it was a seizure because i was not in control of my movements.

 

[masterjen]

LMAO

I could edit it but I had to leave it in

"gyration" is supposed to be "hydration" - brain fart I guess

LMAO

Thanks for my laugh for the day!

 

[JaneP]

so, no, there isn't a way to go "oh wow, I'm having a seizure! I can feel this seizure! I'm seizing! oooh!"
that type of awareness? definitely not

:soap:

lol

Thing is, that's EXACTLY what happened though. I certainly couldn't have (intelligibly) said anything, even if someone would've been around. That's what got me starting this thread. I just think it's weird to say the least given what's always happened before as far as remembering starting to fall but never remember hitting the floor and the "usual" rest of it I'm always told about. But I was fully conscious & alert but as usual couldn't of course control my movements or breathing.....that was the scariest part! Even after I wake up it always feels like there's a 50# weight on my chest not letting me get a full breath of air feeling like I'm suffocating. THAT scares the heck out of me!
(Now....if this quote comes out right this time. I always end up doing it backwards.)

 

[JaneP]

@Jane to the defense of doctors - they aren't holistic practitioners
and that's what doctors are trained to do - to treat conditions with medicine
QUOTE]

Yeah, I know. No offense to them. But as I've said to many people, it's not THEIR fault, it's the biggest influence as to what goes in their textbooks in college, I'm willing to bet as to why they can only discuss drugs & surgery.

(Can someone tell me how to do quotes the right way? 2nd time editing & they still don't show up like everyone else's. I don't know what I did a few minutes ago to somehow make that other one work.)

 

[qtowngirl]

Thing is, that's EXACTLY what happened though. I certainly couldn't have (intelligibly) said anything, even if someone would've been around.

NOT a tonic clonic seizure; whatever seizure happened that night wouldn't have been a t.c.
there are over 40 types (which i would assume you know if you research endlessly) and a few cause the inability to talk, mainly simple and partial seizures (which may or not lead to a tonic clonic).
a t.c. goes alot further than 'intelligibly' being able to say anything (as 'simple' as a simple partial can cause that).... but with a tonic clonic you're not able to say anything AT ALL b/c you're unconscious.
i'm not sure how to be more specific than that jane, and suggest you do investigate seizures quite a bit more before convincing yourself that is what happened.