Hi Mandy
I have just been sitting here reading through some old posts on brain surgery, and I wondered if you could fill us in on how you are doing, and how things are going for you?
I'm not doing too bad, I was down in London on Wednesday seeing my lovely professor, we are playing around with my AED's as I am still having problems. I have to say that they are much improved compared to how they were, but I am having simple partials more often that complex partials, but like I've always said, they are for me, the worst part of having epilepsy!! I was trying to explain to him how my dreams are so incredibly vivid and real, and I seem to have more problems first thing in the morning these days, it's almost as if my brain is struggling to work out wether I am fully conscious or still in bed asleep, if that makes sense? He agreed with me, that there is a fine line between being asleep and awake, and I really have to get up, wake myself up, and get going, I can't gradually wake up, but I've always been like that.
Please fill us in on how you are getting on, did you have the surgery, or are you still deciding wether to go ahead with it, how is your memory doing, and generally let us know how you are? Please remember, that we are all in "the same boat" here on CWE, and I always say this, that we must all stick together and support each other, ban the use of that bloody awful word EPILEPTIC, and spread the word to the general public, that we are as capable and normal and able as anyone else, and having epilepsy does not mean that we are possessed by evil spirits, going to be thrashing around on the ground like some demonic lunatic, peeing ourselves, rolling our eyes, foaming at the mouth!!!! God how I loathe that word!!! I think there is such a misconception with this medical condition because of labels like this, labels that are attached to such archaic images. I really am going to try and do my bit for National Epilepsy Week here in the UK next May, and I really hope to have my book completed and published in 2010!!
Anyway Mandy, I really hope all is well with you, I really hope to hear from you soon, and that you are still smiling? As we say over here, "Keep yer pecker up gal!!!"
Lotsalove
Lainey xxxx