Thank you to our loved ones!

[Chris515]

Some of us were talking about this in another thread, but I wanted to start one devoted to our loved ones who take care of us when we have seizures.



Thank you to my wife Jenifer, you are a star.

Thank you for taking care of me after I have tc's, and calming me down with your soothing voice and beautiful smile when I'm post ictal. I'm always afraid after a tc and don't recognize anything at that time but I know you are safe when I come to.

Thank you for driving me around everywhere, and for driving me home early when I'm having auras and sp's.

I could go on for a while, but I'll just say thank you for always being there for me and always understanding.

 

[Fedup]

Chris515

This is a good idea. Let me say thanks to my wife Marian who is always there for me before, during and after a seizure. I really like hearing your voice for thoes few minuets.

I am sorry that my seizures make you cry, thanks for the bandages and plasters. I am glad that you put up with me. Its handy when you marry a nurse, cuts down on medical bills.

 

[momof3boys]

Great Thread!

Id like to say thank you to my mother. She has been my rock through out my entire life having to deal with my Epilepsy. My husband has been by my side for the past 11 years and Id like to thank him as well. My husband gets kind of nervous and scared when he see's me having a seizure, but I know he's there to support me in any decisions I make.

 

[qtowngirl]

Great idea Chris.

Thank you to my boyfriend for trying to keep me calm, and staying calm himself when I don't listen and go into utter denial. Thank you for putting me in bed as soon as it's possible and offering to do anything that will ease the pain and fear - anything from giving me time to bawl my face off to bringing comfort food to sitting with me while I have a hot bath.
And most of all thank you for the driving, couldn't agree more Chris. Whether I need a coffee or to go to work or a pack of smokes or just want to get the hell out of the house, he grabs the keys and says, 'let's go!'
And you're right, could go on and on, but those are the things that really hit home.

 

[MuayThaiFighter]

I want to thank my fiance for being with me through thick and thin. Our plans got put on hold to get a place and move forward but she has never made me feel bad about the twist of fate. We still have fun even though things haven't been to great with my health. She also has to drive me around a lot, which is funny because I used to drive at first haha. Her family has also been very good to me and I value you them as my family.

My mother and grandparents are all very close to me. Without them I would have been lost a long time ago. They taught me all the life lessons I needed to endure and be a good person.

 

[Suzanne H]

Thank you

This is such a beautiful thread and it made me cry. I am one of the 'loved ones' who take care of my husband who started having seizures last Feb. Unfortunately, he is not appreciative of me at all. He has at least 2 - 3 medical appts. every week and I faithfully drive him everywhere - I don't mind at all. I love him with all my heart and will do anything for him but he never says thank you - instead he complains nonstop about my driving - criticizing me all the time and saying that I give him high blood pressure and that he gets really frustrated with my driving. You'd think he'd be grateful but nope - he's obnoxious because I don't drive the way he drives. And here I am - exhausted driving him to all his medical appts. - some of which are an hour away each way.

So it touched my heart to see that several people actually thank their loved ones and appreciate what they do. I'm hoping my husband will one day appreciate me.

Sue

 

[MuayThaiFighter]

I'm sure he does appreciate what you do for him, it can just be really hard at first to have this come up on your life. I've lashed out at the people who have done a lot for me, and that was when this first came about. You should speak to him about this because many people hide the fear they have and replace it with anger. I did for a long time.

 

[Nakamova]

My friends and family have been very supportive -- and they know me well enough to step in even when I insist that I don't need help. I have one friend in particular who calls almost every day to chat. She's not checking up on me, but if I did need help she would know what to do and who to call. The last seizure I had, she helped me figure out that I'd had one, and then called my sister to come take care of me. When I was foggy for the next month afterward, she was extra-patient and helpful. And when I'm trying a new med, she helps me gauge the side effects (if any) on my personality. BFF for sure.

 

[Fedup]

Suzanne H

Sue I could not agree more with MuayThaiFighter, I am a long time with E now and I have done same, but you are still there no matter what shit I through at you, and I do eventualy know what I done. So from me Sue a very big THANK YOU.

 

[CQ:)]

My Mum is my number 1 support, she has always been there for me in regards to my epilepsy. Both when I took the seizures as a baby & when my seizures returned at the age of 24. I talk to my Mum every day but I'll admit I don't thank her enough for how much she cares.

I also have 4 really good friends who have also been a great support & they are all there for me if I ever need anyone to talk to.

 

[Chris515]

I should thank my mom too, she was always there for me during all the seizures I had as a kid. And my father!

According to my wife, I've asked for my mom in post ictal stage a couple of times.. :embarrassed:

 

[LJ-Bain]

I don't know where my life would be without the assistance of so many people!
My loving and supportive husband who has taken our three kids camping all by himself because I was having a tough weekend! He cooks, he drives, he puts our little ones to bed...and even though he gets frustrated sometimes I know he will always be there for me and our children.
My parents who drive me around, help clean my house and babysit in a pinch.
My in-laws who also drive me around, babysit, cook for us and they even would check on me in the morning when things were rough to see if I needed help.
All the people at my work who car pool me and give me ativan if I need it...

I am blessed and truly thankful for all those who support me and care for me.
Ah geez. I think I'm getting weepy.

We put up with alot but so do others.

 

[jackier]

This is a great thread,

Our loved ones experience a lot and I am also very grateful for them.
Thank you, David, my husband for taking care of me for 26 years-I'm sure I don't say thanks enough. Your support and loving touch is very much appreciated and needed. Also thanks to my parents-they've been with me every step of the way and show support by doing anything they can. And thanks to my kids.

 

[Cint]

This is such a beautiful thread and it made me cry. I am one of the 'loved ones' who take care of my husband who started having seizures last Feb. Unfortunately, he is not appreciative of me at all. He has at least 2 - 3 medical appts. every week and I faithfully drive him everywhere - I don't mind at all. I love him with all my heart and will do anything for him but he never says thank you - instead he complains nonstop about my driving - criticizing me all the time and saying that I give him high blood pressure and that he gets really frustrated with my driving. You'd think he'd be grateful but nope - he's obnoxious because I don't drive the way he drives. And here I am - exhausted driving him to all his medical appts. - some of which are an hour away each way.

So it touched my heart to see that several people actually thank their loved ones and appreciate what they do. I'm hoping my husband will one day appreciate me.

He's probably extremely frustrated now that his freedom to drive has been taken from him and is suffering from depression because of it. And like Mauy said, they hide the fear with anger which is really depression.

After reading everyone's replies, I can only think of my children to thank. I didn't start having seizures until I was 22 years old, married, and living far away from home, so none of my immediate family really witnessed many seizures, at least none while I was growing up. And when I married, my husband was a pilot, so he was gone a good deal of the time and my children grew up witnessing seizures more than their father ever did. And the friends I've had over the years have come and gone, but my children are always a phone call away. Oh, and I am no longer married, either. I'm living all by myself.

 

[Dolores]

In thinking back on my life and who I am today I realize how much I have to thank my parents for. I had my first seizure when I was 11. My parents witnessed my grand mal seizures but I realize now that they never held me back from anything I wanted to try. They encouraged my passion for horses, they let me go on school trips, they helped me get through college, they allowed me to be me.

I realize now that they never made me feel I was different from anyone else.
That's a big part of why I am the person I am today.
And I really do like who I am becoming.

They are no longer with me here on earth but I hold them close in my heart and mind.
Mom and Dad - Thank you so very much!

 

[qtowngirl]

Now that I've just come home from 2.5 weeks in the seizure unit I'd like to thank my boyfriend again. Thank you for being by my side day and night, getting me comfort food so I didn't have to eat the hospital food, and for making it so much less blah. Not everyone would do that. And to that *!@*#! doctor who told me I had a one-of-a-kind guy and to hang on to him... I know! Don't need you to point it out there honey. Thank you babe, let's hope we never have to go through that again.

BTW... after stumbling across this thread again I noticed Chris hasn't been on here for over six weeks. Hope he's okay. Anyone heard from him??

 

[Flowerchild]

Very Beautiful and cool thread.

 

[2ndchances]

So glad this thread became active again, so I can also give my thanks!

To my husband, of just more than a year. We never expected to go through this adventure in our lives together.. and now, because of the return of epilepsy, we're separated by 952 miles, but who's counting. I love you, and miss you everyday, and cannot wait to get on with our lives.

To my amazing son. He was just over a year old when I went through this the first time, and is now a caring, sensitive, strong and compassionate 14 year old. He walks with me willingly to run errands nearby. I value you every single day, and love you more than you know.

To my dad, who took my son and I into his home with very little notice to help me be closer to the medical team that I worked with years ago. For taking me grocery shopping every sunday, and driving me anywhere I go.

To my best friend for checking in with me daily (without smothering), and for picking me up and dropping me off on weekends to just get a break.

For the many other friends who accept me for who I am, allow me to cry on their shoulder, or make me laugh, and remind me of how strong I am, when I need that reminder. Also for this newly found forum, for being available.

Thank you.

 

[Nakamova]

Every time I read this thread I seem to get water in my eyes...

 

[Loopylil]

Thank you to my boyfriend Luke. I know the first seizure you saw made you cry but you have always been there for me. Spending nights awake to keep a eye on me. Giving such precise info to the paramedics and for the hugs and the lovely cup of tea you always make me when I come round.
Most of all thank you for seeing past my condition
I love you xxxxx