Thank you!

[ln1]

I just want to thank everyone for being so willing to share your knowledge about epilepsy and give encouraging words.

Whether I've just had a seizure or sitting here worried about how and when the next seizure will occur, I always feel like I have a shoulder to lean on, and I sincerely appreciate you all taking time out of your lives to help me.

 

[Porkette]

Hi ln1,

I want to thank you also for all of your help. Everyone here has been a great help to me and taught me a lot. I wish you only the best and May God Bless You!

Sue

 

[valeriedl]

Talking to someone without epilepsy isn't the same as talking to someone with epilepsy, even a dr sometimes. It's nice to know when I ask a question on here I find out 'It's not just me!' and someone can always give you some answers and advice in more simple terms. I've gotten so much help on here and I love it when I'm able to help someone too.

 

[Nakamova]

I think you get a perspective here you can't find anywhere else.

 

[acshuman]

The Person Asking The Questions Isn't The Only Person Being Helped!

In1,
I think that there may be more members who feel the way I do about answering questions for people.
I get a good feeling of being helpful when I can answer a question that someone needs an answer to. The person asking the question gets an answer and I get a feeling of accomplishment in being able to use my experience w/E to give that answer to them.
This makes CWE a win/win situation for all of us.
When a person can give an answer to someone they get a feeling that they can answer questions in the future and just keep on building up their confidence by doing this! :clap:

acshuman

 

[Frink]

Yes it is very nice talking to someone with shared experience with epilepsy, so many thing about E that outsiders and even DR's do not understand.


Talking to people on CWE has helped me with my epilepsy and if I can help someone else I am happy to do so.

 

[acshuman]

Too Many Doctors(?) Know Nothing About E!

I have had to inform several doctors that I have had about E. I have used a book about E that is titled 'Epilepsy: 199 Answers' to do this. I simply bring the book to my appointment and give the book to the doctor to read if I feel that they are too uninformed about E.
This book answers many questions that someone could ask about E. It gives an answer in a way that is very easy for a person to understand. The doctor who wrote the book definitely had the right kind of understanding of E and the people who have E. This allowed him to answer these questions in ways that are helpful to both people w/E and those that don;t have E, but still have questions about E.
When I have gotten the book back from the doctors, many of them said 'I wish I would have been taught the information I got from your book when I was in Medical School.'.
There are many books on Amazon that a person can check into when they search for 'Epilepsy: 199 Answers'. These books come up as being related to the subject that this book is about!
I think this book could answer a lot of answers that people need to get and also give people w/E a written place of reference if someone was to claim that those people w/E were making things up!
I was lucky enough to get my copy of 'Epilepsy: 199 Answers' free from a sponsor at am Epilepsy Conference that EFMN(Epilepsy Foundation of Minnesota) held. :clap:

acshuman

 

[ln1]

I have had to inform several doctors that I have had about E. I have used a book about E that is titled 'Epilepsy: 199 Answers' to do this. I simply bring the book to my appointment and give the book to the doctor to read if I feel that they are too uninformed about E.
This book answers many questions that someone could ask about E. It gives an answer in a way that is very easy for a person to understand. The doctor who wrote the book definitely had the right kind of understanding of E and the people who have E. This allowed him to answer these questions in ways that are helpful to both people w/E and those that don;t have E, but still have questions about E.
When I have gotten the book back from the doctors, many of them said 'I wish I would have been taught the information I got from your book when I was in Medical School.'.
There are many books on Amazon that a person can check into when they search for 'Epilepsy: 199 Answers'. These books come up as being related to the subject that this book is about!
I think this book could answer a lot of answers that people need to get and also give people w/E a written place of reference if someone was to claim that those people w/E were making things up!
I was lucky enough to get my copy of 'Epilepsy: 199 Answers' free from a sponsor at am Epilepsy Conference that EFMN(Epilepsy Foundation of Minnesota) held. :clap:

acshuman

This sounds like a good resource. I will try to find it online. Thank you!

 

[acshuman]

How To Get To 'Epilepsy: 199 Answers' On Your Computer!

In1,
I was just looking up 'Epilepsy: 199 Answers' online and found a site where you can download a copy to your computer. Hear is the site: www.babymedia.net.
You have to register to be able to download so you should be able to get a copy to read. Just click on 'START TODAY' to register.

acshuman

 

[ln1]

In1,
I was just looking up 'Epilepsy: 199 Answers' online and found a site where you can download a copy to your computer. Hear is the site: www.babymedia.net.
You have to register to be able to download so you should be able to get a copy to read. Just click on 'START TODAY' to register.

acshuman

Awesome! Thanks so much for locating it.

 

[seagull]

If you can help someone as you stumble through life it has to be good and each person may have slightly different perspective to samething which is good I know I learned a lot about a condition I should been more educated about years ago but for me more helpful red other people's views.If I picked up book on e I fall asleep before end of page google it I get in a temper for me it more productive seeing what others say and learnt.i can take it at my own level

 

[Elsie]

I was shocked some of the stuff I learned about on here. I think I've had the worst doctors treating me (mostly as a child and young adult). I have yet to have a dr. agree with me that these medicines make me sleepy! Last dr. said Kepra doesn't make one "angry, or whatever". She doesn't get that complaint from her patients. Yeah, let me be concerned, ok, and don't belittle my worries. My 2nd dr. had no idea Trileptal can make sodium go low. If I didn't read here, I wouldn't know much of anything!

 

[ln1]

I was shocked some of the stuff I learned about on here. I think I've had the worst doctors treating me (mostly as a child and young adult). I have yet to have a dr. agree with me that these medicines make me sleepy! Last dr. said Kepra doesn't make one "angry, or whatever". She doesn't get that complaint from her patients. Yeah, let me be concerned, ok, and don't belittle my worries. My 2nd dr. had no idea Trileptal can make sodium go low. If I didn't read here, I wouldn't know much of anything!

You are so right, Elsie. My family and I just moved to another state, and when I met with my new primary care doctor, she asked if I wanted her to recommend some neurologists. When I said yes, she asked what was important to me in a neurologist and the number one thing I said was someone who will not dismiss my concerns. That should go without saying, right? Like you, I've had a few providers (especially "specialists") who felt like their word shouldn't be questioned.