Today is Paige's Anniversary!

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

chop456

chop456

New
Messages
226
Reaction score
0
Points
0
One year ago today we received the phone call telling us that Paige was diagnosed with Juvenile Myoclonic Epilepsy. One year ago today I felt my life was going to stop. As a mother, I felt my dreams for Paige were lessened and wondered how we could ever move forward. Oh, do I remember those initial days - shock, fear, questions, and somewhere hidden in there was hope. I could not eat or sleep. Boy were those days hard.

Since then we met with our incredible neurologist, I found CWE and we made a plan for her school and academics. I started educating myself. And here we are - hopeful, happy, moving forward. I still have those days of fear and every morning I still worry about how Paige will do once she wakes up. But we have come a long way. We are stronger as a family and Paige is an incredible young lady. She has transitioned to high school and is on the honor roll and earned a letter in cross country. She amazes me!

In one week Paige and I are running the Disney Princess 1/2 marathon. Last year we had to cancel the run because she was just diagnosed and there were too many unknowns. This is our Redemption Run. She may not be able to run from epilepsy but she can certainly kick its ass!

We choose to be happy. Happy Anniversary, Paige!
 
"She may not be able to run from epilepsy but she can certainly kick its ass"

Yeah!

Paige - you rock (so does Mom)!

Happy running!
 
Yes,all the best for your run!
 
Oh good luck and congratulations! I think it's so cool you're not letting epilepsy get in the way of living a full life :)
 
We did a practice sleep this weekend for our run. We have to be on the bus by 4am! We woke her up yesterday and today 4am so we could see how her body would handle things. She did not even complain about going to sleep at 7pm!
 
Love this post! I, too remember those early days that my daughter was diagnosed. So scary and full of sadness. But with out those moments I would not have met you Beth or so many other people here at CWE and for that we are thankful. My daughter is doing well, finally some control since October. She amazes me with her strength and courage everyday. One day I was in tears after her diagnosis and she said " Mom, whats wrong?" I said "I wish I could take this from you, I wish this was happening to me instead" and she replied " No, Mom. I would rather I live with this so my family wouldnt have to and God gave me this because he knew I could handle it." We are blessed with some pretty wonderful young ladies! :)
 
You must log in or register to reply here.
Back
Top Bottom