Toddlers and 911

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eared2009

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My husband will likely be starting a new job soon. He hasn't had one since before I was diagnosed and I'm worried about being home alone with my two boys (1 and 3). Because of this, I want to teach my 3yo how to recognize and seizure and call 911 if I have one. Does anyone have any advice on how to do this?
Also, any tips for how to keep the 1yo safe if it happens? I worry about that constantly.
 
The two I had were tonic clonic. I was unconscious for several minutes after both. I haven't had any more since then, but I need to be prepared just in case.
 
I think I just had a lot of potential for it and stress, lack of sleep, and not eating enough set me off. I've tried to work on those factors, but with 2 small kids and a good bit of insomnia it's a bit difficult.
 
Maybe it's time to get to know your new neighbors. You don't have to give them all the details, just find out if they are folks you might count on in an emergency to take care of the kids or hold onto a spare key. It's good to be prepared for the possibility of having a seizure, but don't let the anxiety mess with your enjoyment of daily life, especially if your seizures are currently controlled by meds. The threads below may have some helpful tips.

http://www.coping-with-epilepsy.com...s-dial-999-if-we-alone-they-see-me-fit-16460/
http://www.coping-with-epilepsy.com/forums/f23/when-what-do-you-tell-your-kids-17845/
 
O I C. When you had your seizures how long did it take for you to completely come back to yourself. When I started with seizures in 1993 I had tonic clonic as well. I'd go unconscious for a couple minutes then about half hour i'd be 100% again. Is that like your current seizures?
 
I'm really trying not to let my worry interfere much, but I lost a niece a couple years ago who was about the same age my little guy is now, so it's hard not to worry about him.
As for how long I was out, the first one it was about 10-15 minutes. The second I came around much quicker, I'm not really sure exactly how long it took.
 
And it took a long time for me to be back to 100%. I wasn't really ok until the next day.
 
Hello

You've gotten some great advice. The only thing I can think of is to big time baby-proof your house.

I can't imagine the worry you must feel. Hopefully things will be ok,
 
been in that situation i taught my son how to do 999 call..i was frying chip pan at the time cut story short fire brigade came..after that i made sure i never put myself in position like that again,i never used cooker until olman came home,i tried eliminate all danger points..could you ask local epilepsey group for tips also way to make friends
 
If you have a land line, teaching 911 should be relatively simple to teach. When my son was that age, I kept a paper on the fridge with 911 written on it and taught him what it meant and when to use it, and how to match the numbers to the keypad on the phone. I'm not sure about mobile phones. Could you program 911 as a speed dial so that they only have to push one button?

My neurologist told me (I have yet to confirm this) that they make phones for children that are specifically for calling 911. She said they have one button on them, and if they press the button, it dials 911 for them.

There are also these kinds of services: http://www.medicalalarm.com/Medical_Alert_Equipment_Details.html
 
Do you get auras before the seizure strikes? If you do, maybe you could set up a pack 'n play in your living room or wherever you think most suitable, and when the aura strikes, put your 1 year old in it.
 
I didn't have any aura that I noticed, unfortunately. My 3 year old does try to keep the younger one out of things and we have things pretty well childproofed. I'll work on teaching him on the landline and just hope it sticks. He's a smart kid, I just worry that he would panic.
 
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