homemom360
Stalwart
- Messages
- 104
- Reaction score
- 2
- Points
- 68
T/C while awake
I had been lucky (I guess) that for the first ten yrs of have T/Cs that it was while I was asleep and would happen either as I was waking or just as I was falling asleep. I the sleep state that is after you fall asleep but before you are in the REM state. Two yrs ago though that seemed to change and I started having seizures while awake. The first one I had was frankly the scariest thing I have ever been through and I hate every time it happens.
I was sitting in a chair across the room from my husband and daughter, we where all watching t.v., I suddenly started having the usual sensory partial that I commonly have several times a day, but this time it was different. Instead of being on either the right or the left it was on both side at the same time. At the same time my heart started to race and I could hardly breath. I looked across the room at my family and tried to rise from the chair and to cry out for help, but could do neither. I was paralyzed and forced to just watch as my brain did to my body what it wanted totally without my permission. My chest was hot from the increase in heart rate and the lack of air. When I could not speak or stand I really began to panic. (the really weird thing was that this all seemed to be happening like in "movie time" I knew it could of only been seconds or at most a couple of minutes that this whole thing took to take place, but to me it seemed to take for ever) I finally managed to force myself over and fell to the floor. At that time the people in the room realized that something was wrong and came to my aid, just as I went out. The last thing I heard as it all went black was my daughter asking my husband what was wrong and him replying "Oh God." I woke up later, still on the floor, but on my side and with a pillow covered in my own blood under my head. I could not hardly stand to look at my family cause they had the typical after seizure look on their faces but their eyes had a look of true fear, a fear they would not voice but that I could see. I had a horrible headache and could hardly move. It was one of the harder seizures I had had.
For awhile I did not have another one at least not awake, but then one afternoon while in the shower I had the same sensory partial I had had before, on both sides and before I lost all control of my body I managed to hit the shower handle and the floor so that the water was off and I was on the ground and some what safe.
I also have found, and my doctor has no idea how I can do this, that if I can catch myself during the first few seconds of the sensory partial and I can ina sense "distract" my brain fromthe seizure with lots of movement, especially walking and hand rubbing, then I can stop the seizure from progressing into a full blown T/V, but the window is so small that I don't always do it. The doctor tried to catch that on tape and stuff while I was in the hospital at a video eeg but I wasn't able to even try because the only seizure I had was while I was asleep.
I have watched lots of horror movies and been through a lot of scary things in my life, but I have to say that a fully awake T/C is the scariest thing that I have ever been through and I would never ever wish it on any one.
I had been lucky (I guess) that for the first ten yrs of have T/Cs that it was while I was asleep and would happen either as I was waking or just as I was falling asleep. I the sleep state that is after you fall asleep but before you are in the REM state. Two yrs ago though that seemed to change and I started having seizures while awake. The first one I had was frankly the scariest thing I have ever been through and I hate every time it happens.
I was sitting in a chair across the room from my husband and daughter, we where all watching t.v., I suddenly started having the usual sensory partial that I commonly have several times a day, but this time it was different. Instead of being on either the right or the left it was on both side at the same time. At the same time my heart started to race and I could hardly breath. I looked across the room at my family and tried to rise from the chair and to cry out for help, but could do neither. I was paralyzed and forced to just watch as my brain did to my body what it wanted totally without my permission. My chest was hot from the increase in heart rate and the lack of air. When I could not speak or stand I really began to panic. (the really weird thing was that this all seemed to be happening like in "movie time" I knew it could of only been seconds or at most a couple of minutes that this whole thing took to take place, but to me it seemed to take for ever) I finally managed to force myself over and fell to the floor. At that time the people in the room realized that something was wrong and came to my aid, just as I went out. The last thing I heard as it all went black was my daughter asking my husband what was wrong and him replying "Oh God." I woke up later, still on the floor, but on my side and with a pillow covered in my own blood under my head. I could not hardly stand to look at my family cause they had the typical after seizure look on their faces but their eyes had a look of true fear, a fear they would not voice but that I could see. I had a horrible headache and could hardly move. It was one of the harder seizures I had had.
For awhile I did not have another one at least not awake, but then one afternoon while in the shower I had the same sensory partial I had had before, on both sides and before I lost all control of my body I managed to hit the shower handle and the floor so that the water was off and I was on the ground and some what safe.
I also have found, and my doctor has no idea how I can do this, that if I can catch myself during the first few seconds of the sensory partial and I can ina sense "distract" my brain fromthe seizure with lots of movement, especially walking and hand rubbing, then I can stop the seizure from progressing into a full blown T/V, but the window is so small that I don't always do it. The doctor tried to catch that on tape and stuff while I was in the hospital at a video eeg but I wasn't able to even try because the only seizure I had was while I was asleep.
I have watched lots of horror movies and been through a lot of scary things in my life, but I have to say that a fully awake T/C is the scariest thing that I have ever been through and I would never ever wish it on any one.