Tonic seizures in sleep?

[EllyPaddington]

For a long time, before I was diagnosed with epilepsy, I always woke up with a massive headache and my whole body felt like it had been hit by a bus. That is quite literally the only way I can describe it...

I go to bed and my whole body feels fine, I wake up in the morning and my whole body feels as stiff as if I had just done a 3 hour workout. It is an absolutely dreadful feeling.

When I was younger I was told a lot by people whose houses I stayed over that I lash out quite a lot in the night, and even my father noticed when I was young and went into my parents bed when I had nightmares.

I have to wait until October to see my neurologist, who right now is as useful as a chocolate kettle, but we are going to contact my GP and ask her to refer us to another hospital with a specialist unit.

Does anyone have Tonic seizures in their sleep? Does this sound anything like one? Sorry for being vague, I'm still getting to grips with all this :e:

 

[masterjen]

I have tonic seizures in my sleep; I call them full-body stiffening. I remember they have occurred but I barely wake up. I tense up so hard I hear that vibration you hear when you tighten your jaw really tightly. They usually last just a few seconds. I wouldn't say that I lash out, since there is minimal to no movement associated with them.

 

[Nakamova]

It does sound like you may have been experiencing seizure activity in your sleep. If you're still waking up sore from time to time, keep track of how often it happens and let your neurologist know -- you may need you medication adjusted to help control the symptoms. You might also ask about having a sleep study done -- if you're experiencing sleep apnea, that could be a contributing factor for tonic seizures.