Triggers vs AED Control
- Thread starter Blondie47
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Yes, a
trigger can cause a breakthrough seizure, even if you're on AED's. Sometimes the blood serum levels are not quite enough to prevent the breakthroughs from occurring, as one example. Another one is that perhaps that your E has changed......
As far as what I find acceptable, the answer is NONE.
trigger can cause a breakthrough seizure, even if you're on AED's. Sometimes the blood serum levels are not quite enough to prevent the breakthroughs from occurring, as one example. Another one is that perhaps that your E has changed......
As far as what I find acceptable, the answer is NONE.
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In an ideal world, a single AED would provide 100% seizure control with zero side effects - allowing people to live life without compromises.
In reality though, you can think of your seizure threshold as a floating marker in a gauge with triggers exerting downward pressure and AEDs exerting upward pressure. As long as the threshold stays high enough, you don't have a seizure. The pressure exerted by a given AED (or multiple AEDs) may or may not be constant and may or may not cause other parts of the gauge to malfunction. :twocents:
In reality though, you can think of your seizure threshold as a floating marker in a gauge with triggers exerting downward pressure and AEDs exerting upward pressure. As long as the threshold stays high enough, you don't have a seizure. The pressure exerted by a given AED (or multiple AEDs) may or may not be constant and may or may not cause other parts of the gauge to malfunction. :twocents:
forward2007
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It seams like some triggers are strong enough to over ride ANY single AED or combination of AED's.
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Your epileptologist might decide to tinker with your meds (either by raising the dose, or switching to or adding another drug), but it depend on your seizure history, whether you have warning auras, if there is more than one breakthrough seizure, how the meds are already affecting you in terms of side effects, etc. Sometimes, it can just be an infection or an obvious trigger (like you forgot your dose, stayed up all night, etc.) so your doc might opt to wait and see. And of course, you get a say in all of this too...
Blondie47
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yes, that makes sense!
We had a major breakthrough last night, 2 frontals, one was a mild clonic.
The night before, my DD, 13, stayed up till 4am at a sleepover.
Probably the cause of our major breakthrough. I put a call into our epi and am waiting to discuss the situation.
We started Oxcarbazepine in April and have had a few minor breakthroughs and the epi increased the dose each time. Our last increase was July.
I'll let you know what happens.
Thanks for your input!
We had a major breakthrough last night, 2 frontals, one was a mild clonic.
The night before, my DD, 13, stayed up till 4am at a sleepover.
Probably the cause of our major breakthrough. I put a call into our epi and am waiting to discuss the situation.
We started Oxcarbazepine in April and have had a few minor breakthroughs and the epi increased the dose each time. Our last increase was July.
I'll let you know what happens.
Thanks for your input!
My personal
input on this one is that because you KNOW the reason WHY the breakthrough happened (i.e. staying up WAY too late), then the neuro shouldn't up the meds, and back off this time, and see what happens.
Perhaps you should also consider some nutritional choices to help or neurofeedback, too, to get him/her off your case a bit..........
input on this one is that because you KNOW the reason WHY the breakthrough happened (i.e. staying up WAY too late), then the neuro shouldn't up the meds, and back off this time, and see what happens.
Perhaps you should also consider some nutritional choices to help or neurofeedback, too, to get him/her off your case a bit..........