Hello, community seems like my seizures have now switch still not sure if I'm having seizures or not I've been convulsive seizure free for 8 months now but now it seems like something else has raised its head. History 3 MIRs 1 Cat Scan 4 EEGs 2 sleep studies too many blood test to count Heart and lung test all normal.
Now I go into this mode of extream fear and the smell you get when you're scared I smell that then I can't think straight and when someone is asking me a question I say outrages things or say things that are weird or I just can't remember my family name I can still do things like type my password into my phone but I can't think its just foggy this last only a few seconds or mins most are saying I might be having simple partial seizures. This is so stressful because It tends to only happen when I think about my past or I'm with stressful people which makes me think I might be doing all this myself (Nonepileptic Seizures).
Then I tend to think maybe its the medication they started me on Dilantin then moved me to 250mg of Keppra then Carbamazepine I had 2 seizures they up the Keppra to 1000mg then 2500mg then 3000mg they pumped me with everything all it did was made me still was have seizures. 2016 I had 17 in 2017 I had 5 in 2018 3 I couldn't take the side effects of the Keppra it was making me have the strength and rage of the hulk and anxiety waking up can't remember my name. I lowered it to 500mg after my last seizure and trouble the medication got me into last year. That decision has me now seizure convulsion free but having these spells what you call them.
Sometimes I really think its the Keppra doing this, my first time in the hospital that leads up to this wasn't because of seizure it was because of a blackout they started me on all this seizure medication as a precaution which always has it in the back of my head that maybe this seizure medication is what causing all this stuff in the first place. I was happy because I've been convulsive free but now I have this to worry about when these episodes happening its like I'm losing my mind I don't feel like I'm in my body but I can still see it feel like I'm in 3rd person
I'm exhausted when I told the doctor about this he didn't really listen he told me my MRI looks perfect my brain is normal my EEG was normal all of my blood tests have been extremely normal if you look at the number and the number they gage it by its usually that number which makes all this even weirder. Then he said I need to up my dosage back up and gave me Zoloft and rushed out the office to another patient I can't fault him too much the neurology clinic here kinda busy. I didn't take the Zoloft. I'm just embarrassed because I did these episodes in front of company ive had twice this year.
I talked to my primary care doctor shes trying to get me to another neurology but I talked to a clinic close they said they rarely take my insurance so its really up the doctor in the meantime Im just on a wait and deal with this. Sorry if this a long rant I live alone cant drive dont really have many people to talk to about this and when I do they never understand
Now I go into this mode of extream fear and the smell you get when you're scared I smell that then I can't think straight and when someone is asking me a question I say outrages things or say things that are weird or I just can't remember my family name I can still do things like type my password into my phone but I can't think its just foggy this last only a few seconds or mins most are saying I might be having simple partial seizures. This is so stressful because It tends to only happen when I think about my past or I'm with stressful people which makes me think I might be doing all this myself (Nonepileptic Seizures).
Then I tend to think maybe its the medication they started me on Dilantin then moved me to 250mg of Keppra then Carbamazepine I had 2 seizures they up the Keppra to 1000mg then 2500mg then 3000mg they pumped me with everything all it did was made me still was have seizures. 2016 I had 17 in 2017 I had 5 in 2018 3 I couldn't take the side effects of the Keppra it was making me have the strength and rage of the hulk and anxiety waking up can't remember my name. I lowered it to 500mg after my last seizure and trouble the medication got me into last year. That decision has me now seizure convulsion free but having these spells what you call them.
Sometimes I really think its the Keppra doing this, my first time in the hospital that leads up to this wasn't because of seizure it was because of a blackout they started me on all this seizure medication as a precaution which always has it in the back of my head that maybe this seizure medication is what causing all this stuff in the first place. I was happy because I've been convulsive free but now I have this to worry about when these episodes happening its like I'm losing my mind I don't feel like I'm in my body but I can still see it feel like I'm in 3rd person
I'm exhausted when I told the doctor about this he didn't really listen he told me my MRI looks perfect my brain is normal my EEG was normal all of my blood tests have been extremely normal if you look at the number and the number they gage it by its usually that number which makes all this even weirder. Then he said I need to up my dosage back up and gave me Zoloft and rushed out the office to another patient I can't fault him too much the neurology clinic here kinda busy. I didn't take the Zoloft. I'm just embarrassed because I did these episodes in front of company ive had twice this year.
I talked to my primary care doctor shes trying to get me to another neurology but I talked to a clinic close they said they rarely take my insurance so its really up the doctor in the meantime Im just on a wait and deal with this. Sorry if this a long rant I live alone cant drive dont really have many people to talk to about this and when I do they never understand
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