Hi All,
I've been working with my neurologist and keeping a pretty detailed diary of seizures to try to nail down possible triggers. I have some known triggers and some things (such as lack of sleep) that make me more prone.
However, I've begun to notice an interesting trend. While my partial seizures can sort of come on randomly, I frequently have my most major seizures (generalized tonic-clonic or atonic) following a hectic day. But they tend not to happen during periods of stress, fatigue, sensory overload, etc. - but later one, like that evening, when everything has settled down and quiet, and I am starting to relax - this is when they hit.
Anyone else experience this? My neurologist doesn't find it particularly noteworthy, but it seems odd to me. I understand seizures brought on by acute stress or sensory input - but later during the wind-down, that doesn't make much sense to me. And, it confounds efforts to identify specific triggers that could be avoided. I can't exactly avoid peace and quiet.
It makes me think that there must be something else I do during this wind-down that is the actual trigger.
Just curious if anyone else has this sort of experience, and if so, if any other observations might be helpful.
I've been working with my neurologist and keeping a pretty detailed diary of seizures to try to nail down possible triggers. I have some known triggers and some things (such as lack of sleep) that make me more prone.
However, I've begun to notice an interesting trend. While my partial seizures can sort of come on randomly, I frequently have my most major seizures (generalized tonic-clonic or atonic) following a hectic day. But they tend not to happen during periods of stress, fatigue, sensory overload, etc. - but later one, like that evening, when everything has settled down and quiet, and I am starting to relax - this is when they hit.
Anyone else experience this? My neurologist doesn't find it particularly noteworthy, but it seems odd to me. I understand seizures brought on by acute stress or sensory input - but later during the wind-down, that doesn't make much sense to me. And, it confounds efforts to identify specific triggers that could be avoided. I can't exactly avoid peace and quiet.
It makes me think that there must be something else I do during this wind-down that is the actual trigger.
Just curious if anyone else has this sort of experience, and if so, if any other observations might be helpful.
