Update on my daughter

[chop456]

Well, it has been 70 days (but who is counting) since Paige (age 14) was diagnosed with JME. We had a one month follow up with her doctor today and she will be moving up to 200mg of lamictal in 2 weeks. This should (knock on wood) be her therapeutic level. So far she is still having myoclonic seizures about 5 morning per week. I am hopeful that the boost from 150 to 200 mg will help to decrease the myoclonics. To date Paige has not had any tonic clonic seizures but her EEG did show absence seizure activity. The doctor wants another EEG after she gets to her 200mg of lamictal.

We do not go back to see the Doctor until August. Until then, Paige is able to go on her 8th grade school trip to Washington D.C. (I am a Nervous Nelly letting her go without either her dad or I) and she is running track.

Overall, a good day. We absolutely LOVE her neurologist and office staff. They are so patient with this over-questioning and still nervous mommy!

 

[acpollard2010]

lamictal can be a tricky one im on it much higher dose bad cognitive thinking tremors and bad memory part of that is epilepsy but it can be tricky but when i was originally diagnosed i was diagnosed with jme but i had t/cs as well thk goodness for that and i thank absence one just come with the territory.could be wrong but that's my personal experience and im almost 30 and am goin this summer to visit my sis in nc and my family is not happy going alone so that mom worrying thing will never go away sorry...[hugs]