Hi everyone,
(I apologise for the length of this post)...
I suffer from partial seizures of the temporal lobe.
These seizures have been gradually getting more and more intense over the years to a point where
my legs give way and I become pretty much unaware of my surroundings whilst I'm going through the seizures.
After my last visit to see my epileptologist, he's suggested the idea of going down the surgery route.
To establish whether I'm a candidate, I've been having various scans/tests over the past few months.
After having an mri scan, and ambulatory EEG monitoring for a day (I went home with a ambulatory recorder),
I've had the results back saying...
"There is no evidence of which side of the brain may be causing the seizures.
Therefore you need to come into hospital and we need to capture some seizures, I've now put you onto the list
to have a video EEG with drug withdrawal".
Has anyone had this type of scan done?...
What is involved?...
Will they stick me into a room, withdraw me of the AED I'm on until I have a seizure(s)?
Is it a case that I'll be in hospital being monitored until I have a seizure(s), regardless if it's a day, or a month!?
With my temporal lobe epilepsy, my seizures seems to come along in bursts, it's a regular pattern where I'll be
fine for 4-5 weeks, then I normally have a 1/2 days of having a bunch of seizures, then another gap of 4-5 weeks.
The only time this changes is if I have a cold/flu, irregular/lack of sleep, or I do any sort of intense exercise, be it football/squash etc...
This would normally bring on a seizure.
Obviously I've never stopped taking the AED I'm on (200/200 lamotrigine), so seizures could come on
after a day or two.
I'm just worried I could potentially need to be in hospital for weeks waiting for a seizure to come along.
Thanks in advanced.
(I apologise for the length of this post)...
I suffer from partial seizures of the temporal lobe.
These seizures have been gradually getting more and more intense over the years to a point where
my legs give way and I become pretty much unaware of my surroundings whilst I'm going through the seizures.
After my last visit to see my epileptologist, he's suggested the idea of going down the surgery route.
To establish whether I'm a candidate, I've been having various scans/tests over the past few months.
After having an mri scan, and ambulatory EEG monitoring for a day (I went home with a ambulatory recorder),
I've had the results back saying...
"There is no evidence of which side of the brain may be causing the seizures.
Therefore you need to come into hospital and we need to capture some seizures, I've now put you onto the list
to have a video EEG with drug withdrawal".
Has anyone had this type of scan done?...
What is involved?...
Will they stick me into a room, withdraw me of the AED I'm on until I have a seizure(s)?
Is it a case that I'll be in hospital being monitored until I have a seizure(s), regardless if it's a day, or a month!?
With my temporal lobe epilepsy, my seizures seems to come along in bursts, it's a regular pattern where I'll be
fine for 4-5 weeks, then I normally have a 1/2 days of having a bunch of seizures, then another gap of 4-5 weeks.
The only time this changes is if I have a cold/flu, irregular/lack of sleep, or I do any sort of intense exercise, be it football/squash etc...
This would normally bring on a seizure.
Obviously I've never stopped taking the AED I'm on (200/200 lamotrigine), so seizures could come on
after a day or two.
I'm just worried I could potentially need to be in hospital for weeks waiting for a seizure to come along.
Thanks in advanced.
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