scaredtodeath
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Vns therapy was suggested today anybody used it or know someone any input or opinions
vns therapy
- Thread starter scaredtodeath
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I'm one who has the VNS and am happy with the outcome of it. I had it put in as a last resort, after a failed lobectomy and trying many meds. It won't make a person 100% seizure free and it does have side effects.
Click here for more discussion on the VNS:
http://www.coping-with-epilepsy.com/forums/tags/vns.html
Click here for more discussion on the VNS:
http://www.coping-with-epilepsy.com/forums/tags/vns.html
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I also have a VNS and I'm very happy with it. I've had it since 2007.
I'm unable to have surgery so my neuro suggested it. I'm still having seizures but not as many. I was having around 5 a week before it now I'm having maybe 5 a month at most. They aren't as bad as they were before either. I am still taking medicine too.
It takes awhile to get the settings right so don't expect to walk out of the hospital seizure free once you get it. The 'voltage' (I don't know what it's actually called) has to be increased gradually, and you have to find the right settings for you. I'm still having to get it adjusted every so often if my seizures start to increase.
If I feel the seizure coming on I can stop it. The only problem is that my auras are usually short. So sometimes by the time I realize that I'm having one it's too late. If I do know I'm having one and use it I won't have the seizure.
If I'm having a seizure and there is someone there with me they can use the magnet on me and it will bring me out of the seizure faster.
I'm unable to have surgery so my neuro suggested it. I'm still having seizures but not as many. I was having around 5 a week before it now I'm having maybe 5 a month at most. They aren't as bad as they were before either. I am still taking medicine too.
It takes awhile to get the settings right so don't expect to walk out of the hospital seizure free once you get it. The 'voltage' (I don't know what it's actually called) has to be increased gradually, and you have to find the right settings for you. I'm still having to get it adjusted every so often if my seizures start to increase.
If I feel the seizure coming on I can stop it. The only problem is that my auras are usually short. So sometimes by the time I realize that I'm having one it's too late. If I do know I'm having one and use it I won't have the seizure.
If I'm having a seizure and there is someone there with me they can use the magnet on me and it will bring me out of the seizure faster.