My sons medical team are still on the hunt as to what is going on with him. A few weeks ago he had a long event where after waking he couldn't use his left arm, eyes were rolling and for several minutes he was frozen on the spot. When he tries to walk it was like he couldn't remember and fell over and then didn't remember how to get back up. Since then most days he has had periods where it is like he either can't or won't walk, he usually also has small events/seziures as the same time where he will lay down, wide eyes but he's not there then he will come back but not be able to stand or balance let alone walk. In amongst this he has short times where he can smile sometimes stand and take a couple of very wobbly steps but then its back to his strange state. Also usually just after or sometimes during these events he has other small events where he will suddenly arch back and eyes rool back but then just as quick he's back.
His Nureo asked me to do a test on his hip joints to make sure they were not the issues, I had the nurse at his child Care do the test as well in case I had done in incorretly she agreed with me they seem fine. He has his hips checked every 2 months when he see's his Paed re his slower developmnent, so I was not suprised at this. The other thing the Nureo said it could be was that Seizures overnight can throw his brain and its like he's walking in a cloud? Does anyone know what this means. I will ask the Nureo next time I speak to him as he gave me this info by email. We are still hoping he will bring my sons MRI earlier as although his good periods are usually amazing now, almost like most 16month olds, his other periods seem to becomming longer.
Thanks
Donnjane
His Nureo asked me to do a test on his hip joints to make sure they were not the issues, I had the nurse at his child Care do the test as well in case I had done in incorretly she agreed with me they seem fine. He has his hips checked every 2 months when he see's his Paed re his slower developmnent, so I was not suprised at this. The other thing the Nureo said it could be was that Seizures overnight can throw his brain and its like he's walking in a cloud? Does anyone know what this means. I will ask the Nureo next time I speak to him as he gave me this info by email. We are still hoping he will bring my sons MRI earlier as although his good periods are usually amazing now, almost like most 16month olds, his other periods seem to becomming longer.
Thanks
Donnjane