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Redsaber

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I haven't introduced myself yet.. But I have been lurking for a little while.

My name I will explain in two words - star wars.

I have known I have e about 7 months ago. I had a tonic siezure. But, a few months before the incident I started feeling odd. My muscles felt like electric current was flowing through me. I kept on saying I just didn't feel right. I was trying to lose weight but gave up the exercise because of the feelings. Went to my regular dr who told me to take some iborphine. Well, I just went on my merry way. In July, I was very emotional on a high cry and yelling state. Then early august, I started to shake really bad and by th middle of the month I started slurring too. I had this feeling like I was going crazy. I felt how much can a person take? Well finally I ended up at urgent care. They did the touch my nose bit. Then said I don't know and the Er wouldn't be able to help me either. So back to work I went. Twice as bad with the shaking and stuttering. I went to the Er. They took me straight in and by the time I said my second sentence I was blacking out. I came to for a few seconds when I say my husband holding my arm down.... Got to go back to work .. To be continued
 
Hi Redsaber, welcome!

Before I had my first seizures I also had a few months where I didn't feel "right". Not so much the electric current sensation, but times when my whole left side was extremely tense. In hindsight, I realize it was an early warning sign...

Anyway, I hope you are stable and feeling better now.

Best,
Nakamova
 
So anyway, I woke up upstairs at the hospital. First thing I asked, to go potty. The nurse wouldn't let me out of bed. So I got the metal pee pot! Anyway, I don't remember much of the next three days at the hospital. The next day after a got out was my birthday. What a present!
I ended up going to the Er two more times that week. The first time the Er dr couldn't find the neurologist. So the Er just said I don't know and let me go home. Two days later, had another one, it was the holiday weekend. So I went to the city hospital. Was stuck in the hallway because it was so busy. They just upped my meds to Keppra. I got home 1 am and was up at 6. They told me no more working until I was cleared by a dr. Two weeks later I was cleared by a dr.
My life seemed to be a wreak! I was not sleeping, had migraines all the time, so stressed out(which I will never talk about and wasnt eating. The high dose of meds I didn't have any more episodes. When I went back to work, I was light duty. I work at a deli and I was told NO knives. Everything I do I use a knife. It was hard to deal with my reality and feeling useless at work at home.
Now at this time I am in transition of meds. My neurologist said he didn't want me on Keppra because of my mental state. He said I came out of the S very angry (which I still don't remember.) I just started to have anxiety attacks with Keppra. So that also made him want me to change meds. I feel a little crazy how he talks about it. I have this new med now and it's starting to help. I finally started to smile again. Things seem to be getting better. I still have a lot of thoughts and feeling about this. I am scared about gettin off Keppra. I'm still tired but I see a bit of sunshine peaking from the dark clouds. But, I know there is darkness ahead.
 
Lamictal currently 200mg a day and Keppra 1000 mg a day. My neurologist wants me completely off Keppra and 500 mg a day of the lamictal. Yesterday I was fine and happy and well today I keep thinking I hate myself. Which has been a constant through my life. 11 years ago I was diagnosed as depressed. After some current research, I know that with e comes depression and add. I have both. Counseling is totally out of the question so I keep going.
 
Redsaber,

Welcome to the forum! I'm glad you found us here. The people in CWE have been so helpful to me in understanding seizures and what they are like and how to cope.

It can take a long time to settle down on the meds. I'm on Lamictal, and it's supposed to have the least effect on people cognitively. I don't really know about that, but I think that statement is probably right.

Again, welcome!
 
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