What a last 24 hours!

[Cherriuz]

First seizure. Down cracked my head open on desk. Second, pissed myself, usual stuff. 3rd was in the ambulance. Oxygen, blue lights. They trying to keep my oxygen up. 4th and 5th were at hosp. And now I'm just drowzy from meds and feeling sick. Just got home with a very sore head and a very bruised hand from letting the trainee paramedic put the line in (well, he has to train sometime!)

They are weaning me off the citalopram as that family of drugs doesnt help with people who have seizures, although they have noted down what happened as an epileptic fit, so they need to find a new "family" of anti depressants to treat my mental health with.

The leading consultant has wrote to my doc saying she needs to ring neurology and push my appointment to AT THE LATEST the end of may. So off I go to see her again Tuesday.

/sigh

does it ever end? onder:

 

[seizurrific]

Big hug!!

I'm so sorry you had to go through all that- that's awful : / Are you feeling any better? Man I hate those drugs- the Valium Ketamine Ativan cocktail always leaves you fecked...it's like being on some sort of epilepsy crack crash- they leave you drowsy and stupid for days and days (you should have seen me after my status...holy Jesus...). Get plenty of rest and treat yourself gently :/

A trainee nurse in hospital 3 days ago when I was in there for my VEEG stuck me 6 times trying to get a vein for the IV and was ready to keep going until I shrieked so loudly and thrashed so much with the discomfort that the guy watching the VEEG called Rapid Response as the EEG was scratching all over because I was flipping out. The nurse was SO embarrassed. They got the damn needle in there though so I didn't mind. I now look like I shoot heroin though...

Is there a way you can see your neuro earlier?? 5 seizures is so serious that I can't believe he didn't slip you in way earlier! Your meds need adjusting/he needs to pay strong attention to your case...we don't want anything mental to happen to you!

I hope you're feeling better/ doing better. Let us know how things go- I'm sending you lots of positive energy.

-Seiz

 

[Chaz1]

Cherriuz

that was 24hours I am sure you are glad have passed.. So sorry..

Is there anything that you suspect triggers your seizures or hit totally out of blue?

I hope you will can find time to heal, rest and rebuild your strength.

 

[Cherriuz]

Thank you both. I have gotta go back to my docs tuesday to talk about pushing the neurology as the lead consultant has sent her a letter saying she needs to get on it NOW. for now it's, hold on tight, wean off the citalopram and up the lamictal. for reasons im unsure of, they have give me ONE HUNDRED cyclizine 50mg (anti sickness tablets) - im considering opening a drug store with all the drugs ive got right now. my hand is a right bloody mess. the poor trainee was more nervous than me apparently. mainly coz i was long gone.

They totally hit out of the blue - well as far as i know (the whole last 24 hours is one big blur right now, which involves police, blue lights and being poked at, are basically things i remember right now. maybe ill start piecing it back together BUT I WONT HOLD MY BREATH ON THAT ONE.

I really hope it gets better than this over time. I CANNOT keep going through that! onder:

 

[MaryK]

Cherriuz: I am so sorry so much is happening with no clear explanation with all the drugs. Is there any way that your primary doctor would do a direct admit to the hospital so you could see a neurologist more quickly? I know every county is different on this and I see you are in the UK so not familiar with the health system.

Hoping you will be able to be seen sooner that the end of May.

MaryK

 

[Nakamova]

I hope you feel better soon, you've had quite a rough patch. You might want to call at some point and ask what the cyclizine are for -- not a good idea to have the meds around unless there's a good reason and clear instructions...

 

[CQ:)]

Hi Cherriuz:
So sorry to see you had a rough 24 hours, hope you feel better soon.
Good luck with your drs appt on Tuesday & hope they will be able to get you into see the neurologist quicker.

 

[LJ-Bain]

Holy moly. What a day.
How is your head from cracking it on the desk? Does your hand feel any better? I hope it wasn't your right hand if you're right handed.
You must be sore all over!
And really...what has to happen for things to get moved up even sooner?
Are you taking the cyclizine? Does it help or do you feel anything when you don't take them? That's interesting.
I hope you are seizure free for a long time now. You've had more than your fair share in such a short amount of time.
Keep us up to date. I hope you're feeling better every hour and that every day shows improvement from here on in.

 

[Cint]

They are weaning me off the citalopram as that family of drugs doesnt help with people who have seizures, although they have noted down what happened as an epileptic fit, so they need to find a new "family" of anti depressants to treat my mental health with.

does it ever end? onder:

Hi Cherriuz,

Sorry to hear you're having such a rough time. I've had epilepsy for over 30 years and struggled with finding an AED and an anti-depressant, also. I see an epileptologist and was seeing a good neuropsychiatrist who's specialty was epilepsy and depression. Initially, he had me on a tricyclic anti-depressant instead of an SSRI, which is what citalopram (Celexa) is. The tricyclic drugs didn't do a thing to treat my depression, so he changed to the SSRIs for me: Prozac, Zoloft, Paxil, Lexapro, just to name some. Currently I take Zoloft along with Keppra for seizures and Topamax. Sometimes Lamictal is used as for treatment for bi-polar patients as is Topamax and a few other seizure meds.

He probably has you on cyclizine because you feel sick from the side effects of the other drugs. It is a vicious cycle. I had to go to the extreme to get my seizures under control.

Hope you find answers soon.

 

[rich956]

:e:Super big Hugs.so glad your ok.:e::dancing2:

 

[Cherriuz]

I will try reply to everyone in one go. I was admitted to the medical assesment unit, and would have got to see a neurologist the next day but it was saturday and they dont work weekends so all they could do was drug me up and keep an eye on me.... what a bum... not one neurologist working weekends in a huge hospital, thats not even funny.
I had to settle for the lead consultant who said everything considered and medical staff seeing a lot and the fact the ct is clear he is happy to say they were epilepsy but its not his place to diagnose but hes put that in the discharge letter to my doctor.

the anti sickness meds dont expire for 2 years so may aswell keep them, never know when someone might be suffering with sickness - my bf says i was moaning alllll night about my head being sore and feeling sick, so maybe that does make some kinda sense.

My drs appointment tuesday depends on me actually getting a slot with Anna, the doctor who is treating me with all this. its like trying to win the lottery. hoping to get an emergency slot with her, either that or ill let my social worker sort it again.

My head is sore, they have given me something for the pain. My hand hurts more today than yesterday and is one big bruise, yes its my right hand, yes im right handed, give him a break he was a trainee and more nervous than me, hahahahaha!

Apprently when my sats dropped so low and they put the blues on they had to pull someone out the front to the back to takeover because he started to panic, but, he has only just started his training and isnt used to dealing with panics yet. BUT, all considered he was great, really caring and looked after me well (according to my bf). So apparently ive told him not to change career because he will be a good paramedic when hes trained up. so hopefully in the drama, i managed to perk his day up!

Everypart of my body is sore, they have sent me painkillers and ive just had a 16 hour sleep!

I'd like to end on a moan, apparently In a confused state after i walked out of a and e only to be picked up by police who found me and my bf, apparently i didnt even remember leaving, i still dont remember leaving. Only to go back and be told by a nurse who doesnt speak much english "this isnt an nursery if you want to stay sit still and behave" WELL THANK YOU FOR THAT LADY BUT I DONT EVEN REMEMBER LEAVING/WHY I LEFT and apparently i didnt at the time either.

Im kinda glad i have my bf to fill me in on everything, its like piecing together a puzzle.

Sorry for the long post!

much love
Sarah

 

[Cherriuz]

Oh and a question. Had THE most fucked up dreams during my 16 hours kip. anyone else had this post being drugged up to the eyeballs?

 

[seizurrific]

Yup... I don't know what they gave you but I was fucked up for about a week after my first night. I was in status so they pumped me full of pretty much everything to deaden my brain. I was so twisted 3 days later that my father would come in the room and just start laughing- I was talking to myself about some guy getting a bucket of .green. paint to pain the doors .red. and how I would reward him with a bottle of wine and fish fingers....totally fucked lol

 

[Cherriuz]

unsure myself hun, they were warned we were coming in on blues and i was dropping sats so it was already drawn up waiting for us.

 

[seizurrific]

Oh goodness...are you still a little out of touch or are you feeling pretty well put together again?

 

[Cherriuz]

Well, I was feeling sort of okay till I finally gave in and took codeine for the cut on my head/the mess they made of my hand. Now im off my tits again. Doctors say if i cant get in with the doctor who is treating me I will have to settle for someone else in the morning which means ill have to backtrack through the whole story.... GAH.... fingers crossed i can see the lady who has been treating me for years...if not i may just ring my social worker and have her bully them