What kind is this...???

[Endless]

Okay, I know what most of my seizures are or can figure it out. One has me a bit stumped. It wakes me up. My left side jerks for about 10-15 seconds after I wake up. It's all kind of hazy, but I remember it. It's the second night this has happened. Last time I htought it was a dream. No mistaking it this time. Several times I've woken up to my left foot twitching for about 30sec - min. My epi said that wasn't a seizure. So I haven't called and told him about any of the rest of this.

I figure it is a simple partial motor seizure. My usual seizures are temporal lobe. Where the heck is this one coming from? Is it possible to also be temporal lobe?

I've also had one where my knees lock and I say "stop" but my legs keep walking for 4-5 steps - I can't stop them. I was perfectly conscious and remember it.

Anybody else have these? Where the heck are they coming from in the brain? If it's not the temporal lobe I am not a happy camper. That would mean where my seizures are coming from is spreading to other parts of my brain. Does spreading to different areas mean that things are getting worse, or the same just different?

 

[momof3boys]

Ive been having the twitching in my feet and hands. It starts out with a numbness and tingling feeling, and then at times will go into a twitching/jerking. Its been mostly on my right side that Ive noticed it.

I have seizures in my left temporal lobe, so anytime I have a seizure, my head wants to turn to the right, and it usually affects my right side of my body first.

Ive been looking into these twitches more and more each day, and Ive found that jacksonian seizures are matching my symptoms of the seizures Ive had during my VEEG and after being home, Im seeing the same results.

I will be asking my neurologist about the Jacksonian Seizures when I see him in May.

 

[momof3boys]

Here some information that tells alittle more about the jacksonian seizures:

Jacksonian seizure also known as Jacksonian march is a specific form of epilepsy. This form of brain disorder involves a movement or progression of the seizure location in the brain, which further results in marching of motor representation of seizure symptoms. This disorder involves brief changes in movements, sensation or nervous function which is caused by abnormal electrical activity in a small area of the brain.

Jacksonian seizures are started with abnormal electrical activity within the primary motor cortex. They have a unique characteristic which makes them travel through the primary motor cortex in quick progression affecting all the corresponding muscles. They many a times begin with fingers.

Symptoms of Jacksonian Seizure

Symptoms start in one part of the body, then spread to another.
Abnormal movements may occur in the hand or foot
They move up the limb as activity moves ahead in the brain.
People can remember all the things which are occurring during the attach of seizure.
Head turning
Eye movements
Lip smacking
Mouth movements
Drooling
Rhythmic muscle contractions in a part of the body
Abnormal numbness
Tingling
Crawling sensation over the skin


This site tells how the twitching is associated with Jacksonian Seizures: http://www.bukisa.com/articles/141808_what-to-do-if-you-witness-a-seizure

 

[Loopy Lou]

Well, that definitely sounds strange. Which temporal lobe do your seizures come from? Mine comes from left and right and then spreads to rest of brain, but mostly starts in the left side, so its mostly my right side that gets twitches like what you described.

Are these events actually waking you up or do they start just after you've woken up?

 

[Endless]

In the past my seizures have been in the right temporal lobe.

Lou, the ones I referred to wake me up, and last about 10-15 sec. after they wake me up.

Mom, I've had the head turning in the past, but it was during a complex partial seizure. Interesting about Jacksonian. I have tingling, but I thought mine was because of the Diamox I'm on (very painful tingling is a common side effect)

I'm afraid to bring anything different up to my neurologist. He just gives me this look, and either discounts it or says something else negative.

 

[mlbandura]

Luke also has temporal lobe and this happens to him sometimes before he goes into a complex partial (always at night). It always happens on his right side and is localized to his foot and leg. It is strong enough that it wakes me up (he sleeps with me most nights). I'm not sure if he realizes it is happening. At that time of night I'm not really thinking to ask him..lol

I mentioned it to his neurologist at his last appointment and they said it was a seizure although they did not specifically say what kind. I have a call into his neurologist about his meds when she calls me back on Monday I will ask her what category it falls under and I will let you know what she says.

 

[momof3boys]

In the past my seizures have been in the right temporal lobe.

Lou, the ones I referred to wake me up, and last about 10-15 sec. after they wake me up.

Mom, I've had the head turning in the past, but it was during a complex partial seizure. Interesting about Jacksonian. I have tingling, but I thought mine was because of the Diamox I'm on (very painful tingling is a common side effect)

I'm afraid to bring anything different up to my neurologist. He just gives me this look, and either discounts it or says something else negative.

Before I had my VEEG, I was having Complex partial seizures. I wasnt able to get to have a complex partial during my veeg stay in the hospital, but since then, Ive been having what my dr's nurse is believed to be simple partial seizures. The Keppra XR wasnt holding them enough, I was having the tingling and numbness feeling, (I still have it, like right now my right foot is completely numb!) it comes and goes.... but just on tuesday, I had a seizure where I was consious when I felt the feeling come over me, like the aura feeling that something was about to happen, then I got a very sad feeling that came over me, and next thing I know, my head was turned to my right, and I realized I was looking at the wall. I had a headache afterwords too. That my dr's nurse said sounds to her like a complex partial seizure, since I dont recall what happened after I got the sad feeling and then realized I was looking at the wall. So, even though I wasnt able to have a complex partial seizure during my VEEG, I was just put back on the keppra xr thinking it would hold my seizures over, and in my case it didnt, which then brought on the complex partial seizure tuesday night. Since wednesday, my dr added vimpat to my keppra.

It sounds like you could be having the Jacksonian seizures.... I know I will be asking my dr about these when I see him in May.

 

[Endless]

Okay. I've been doing some research on Jacksonian Siezures.

They originate in the Primary Motor Cortex.

The primary motor cortex (or M1) is a brain region that in humans is located in the posterior portion of the frontal lobe. It works in association with pre-motor areas to plan and execute movements.

http://en.wikipedia.org/wiki/Primary_motor_cortex

Jacksonian seizures are extremely varied and may involve, for example, apparently purposeful movements such as turning the head, eye movements, smacking the lips, mouth movements, drooling, rhythmic muscle contractions in a part of the body, abnormal numbness, tingling, and a crawling sensation over the skin.

http://en.wikipedia.org/wiki/Jacksonian_seizure

http://www.answers.com/main/ntquery?s=jacksonian+march&gwp=13

http://www.epilepsy.com/node/968069

Oh, man. They mention a person not being able to speak or move. That's happened to me before, too. I assumed it was some kind of sleep disorder or bad dream. But that's kind of crazy because once it was during the day. Denial is a powerful thing.

 

[momof3boys]

From what Ive read and researched over the internet, I think what Im having could be jacksonian seizures... the funny aura feeling, the numbness in my hands or feet, which has lead to a sad feeling, and then turning my head to the right, I sometimes will get the twitches at night. I havnt seen them during the day time for a few days now, but at night, when Im all relaxed and sleeping, I get the feeling a motor is running through out my whole body, and then my right side, usually my arm and hand begin to twitch. But not for long.... maybe 20-30 seconds, then it quits.

Ive been trying to find any information on Jacksonian seizures being hard to detect on EEG's. I had the same seizures during my VEEG stay. Im just wondering if these seizures are hard to locate on VEEG or EEG?

 

[momof3boys]

I found on this web site more information about the jacksonian seizures, this pretty much explains how my seizures turned out to be while doing the VEEG. The numbness starting in my hands and feet, which then had the jerking to my right part of my body, and the numbness increased and spread to my whole face and leg areas, as well as my hands and feet where it began. My whole body, especially my legs felt so weak after the seizures, I remember telling my mom they felt like they weighed 1000 lbs each!

https://phr.emrystick.com/patient-education.aspx?medical-term=jacksonian-seizure

History Jacksonian seizures are extremely varied. They may present with localized muscle twitching or contractions of the fingers of one hand, the face on one side, or one foot; and sometimes a series of these movements build up to a contraction. In some cases, the one-sided seizure is followed by a turning of the head and eyes to the side. In the classic Jacksonian form, the seizure spreads from the hand up the arm to the face and down the leg ("Jacksonian March"). If the first movement is in the foot, the seizure marches up the leg, down the arm, and to the face. Usually the seizure is fleeting and lasts 20 to 30 seconds. There is no loss of awareness, alertness, or consciousness if the motor symptoms remain confined to one side of the brain. Partial motor attacks usually involve the limbs, face, or head and can cause speech problems. Seizures are often followed by a period of weakness or paralysis.

 

[fluffance]

I'm suspected of having Temporal Lobe Epilepsy (waiting on diagnosis) so I'm not on any medication. I have a fuzzy/numb feeling in the right side of my face and right arm and hand. It's almost like when your at the dentist and you get the needle to make you numb, but its only fuzzy first and you can still feel. So the feelings like that, before you're fully numb. Sometimes I can't feel my right toes.
So because I'm not on any meds, and I'm having fuzzy numbness, yours might NOT be side effects. J