What kind of seizures are these?

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BrandiBrat

BrandiBrat

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The majority of my seizures are in my sleep, with the exception of all of the simple partials being during the day and about 20% of my complex partials being during the day. I have myoclonic upon falling asleep and awakening and its a grab-bag while I'm at full sleep. I wander, sort through things, hide objects, mumble to my daughter, and do weird things that I do not remember the next day.

Last night around 2am and again at 4am I was awoken to my full body being stiff as a board and I couldn't breath for a split second. Even my neck was in this weird state. I mean, I was STIFF. I sleep on my stomach and my muscles were so extended I was almost looking at the ceiling both times it happened. My back hurts like I had one heck of a workout at the gym. It lasted only a second and as soon as I woke up in this state it was over. I got my breath and went back to sleep.

I see my neurologist this afternoon to go over my Amb. EEG from 2 weeks ago. Does anyone else get these kind of seizures or know what they are called?
 
Thank you, Nakamova. That sure looks like what I felt last night. Even the wide eyes, when I came to (or woke up during it) I'm sure I looked like a frightened cat.
My Topamax isn't working anymore and I haven't slept in about 3 weeks. My body has, but my brain hasn't. I'm miserable :( and I hope to get some relief today.
 
Oh dear. It is good you see your neuro this afternoon. Take care my friend. I hope those seizures are few and far between for you.
 
Well, I saw the Dr. and we went over the Amb. EEG results. She kept me on the 300mg Topamax and added 300mg (I think it says twice a day ??) of Trileptal and gave me a referral for the VNS!! So excited about the VNS. It means relief and possibly sleep, finally. She says my EEG was aweful....lots and lots of seizure activity. Yeah, I could have saved us a lot of money and time and told her that myself. (sorry, I'm tired and miserable from no sleep). :paperbag:
So, I'm hoping that relief is in sight!! :)
 
I really hope things improve for you Brandi. Big, big hugs. I hope you get some sleep and relief soon .No apologies necessary. We are all friends here and although we may not personally understand what each other is going through, we accept that we are all experiencing good times and some pretty lousy ones. Hang in there and hopefully this will all settle down for you soon. x
 
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