what kind of sz!

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cool1984

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hi all not been on here in a long time so hi to all

ok here goes this started summber 2006 it hapinds a lot when i wake up and start to feeling not right and feel a bit ill that something going to hapind cannot really expline

ok what i no or sort of i woke up feel mins later i start to shake and i now this is happing

sometime i go deaf i dont think when people talk to me i asnser back so it like my hold body cannot do anything all that goes on is shaking


i been reading on the net as far so far i have been told at the hostpal i am having

i have read the syons for Simple partial and it souds like that what is happing at time



caz xx
 
Hi caz, it's nice to see you here again.

Were the doctor's able to do any tests and make any determinations on your seizures?
 
cool1984 said:
hi all not been on here in a long time so hi to all

ok here goes this started summber 2006 it hapinds a lot when i wake up and start to feeling not right and feel a bit ill that something going to hapind cannot really expline

ok what i no or sort of i woke up feel mins later i start to shake and i now this is happing

sometime i go deaf i dont think when people talk to me i asnser back so it like my hold body cannot do anything all that goes on is shaking


i been reading on the net as far so far i have been told at the hostpal i am having

i have read the syons for Simple partial and it souds like that what is happing at time

caz xx
Click to expand...


Hi Caz!

Sounds to me that you are scared, and you are
trying to talk to them and you can't hear them
because you're having seizures (shaking),
and you don't know what to do.

Caz, what did the Doctor tell you what is going on?

I know this can be a scary thing going on.

(((((( hugs )))))))

Sharon
 
hi Sharon
thanks for your nice message! :D

well i start having sz in novmber 2005 and i did not told in till octber 2006 but we new all that time that there where sz i was having! :cry:

my first sz i had was one day at college i was in halls and i did not feel well and i started in bed that day and about dinner time i woke up and start to shake could not stop this from happing "did not undedstared what had happind" and from that day on wards my arms hends legs would jark when i was in college and sometime it would make me really tiyed and i would end fall asleep lol" :cry:

so on going i was having them in my sleep few time a few i would say 4-6 could of been more in may las year i start going deaf at time getting hot and sart having sz where i new wha was happing to me and there where really shaing

caz xx
 

Caz ...

I am just wondering, are you deaf now? Or just deaf
when you have seizures/shakings?

I have 2 types of problems, nerve damage and epilepsy,
my hearing was damaged by nerve damage at first, which
caused me to be slightly hard of hearing (I could hear but
just not at certain tones or pitches), then car accident in
1988 made me deaf overnight. So I am profoundly deaf
since then with 110-120 dB range... so I'm D-E-A-F! :?

I am wondering what College did you go or were you
going to? Gallaudet University?
 
can you expline this

That's no fun ....

Sounds like you have Reflex Seizures:
This is only a partial listing and not a full
listing - deafness / blindness is also part
of the Reflex Seizures (I experience temporary
blindness at times myself in the past)


caz xx
 
cool1984 said:
can you expline this

That's no fun ....

Sounds like you have Reflex Seizures:
This is only a partial listing and not a full
listing - deafness / blindness is also part
of the Reflex Seizures (I experience temporary
blindness at times myself in the past)


caz xx
Click to expand...

OK On that webpage at the link above,
is only a partial listing - it's an educational webpage
that only provides "abstracts".

Reflex Seizures - which impairs: vision, taste,
hearing, touch, etc.

That's only a partial listing - not a complete listing.

Hope this makes it more clearer?

:)


I have Startle Epilepsy for example - that is a Reflex
Seizure and it shows up on EEG - and it's related to
touch. But this is very rare I ever get this when I am on
AED medication no matter what the dosage is, however,
when I am NOT on AED, I seem very prone to get this.
 
yeah that clear
i do no when i am not on my e meds i have more sz and if i mix them up they make me feel a bit ill

what meds are you on?

caz xx
 
cool1984 said:
yeah that clear
i do no when i am not on my e meds i have more sz and if i mix them up they make me feel a bit ill

what meds are you on?

caz xx
Click to expand...




Currently On:
Zonegran 500 mgs daily
(200 AM / 300 PM)
Klonopin 1.5 mgs daily
(.5 TID / 3x's a day)
Been seizure-free going on 3 months now

----------------------------------------

Meds I can take with no side effects:
Mysoline & Dilantin
Dilantin is currently the "spare tire in the trunk" because
it has caused atrophy of my teeth (ruined my teeth) after
long term usage - more than 15+ years

*** Dilantin is the back-up reserve in event if all
other AED fails, because it works so well, even mono
while at 80% success (better than nothing) this is
something to 'fall back to' - I am trying to get off
of this ***

-----------------------------------------

Allergic to:
Phenobarbital, Tegretol/Trileptal
Bad Reaction:
Keppra

-----------------------------------------

AED's that I can't take long term or side
effects will start to develop:
Depakote/Depakene, Felbatol, Lyrica
 

The best Cocktail ever was when Dr. Ted Franco had
was: (early 90s')

Dilantin 200 mgs TID
Mysoline 250 mgs BID
Depakote 125 BID
Phenobarbital 30 mgs TID
with Klonopin at night with 2 mgs

I was seizure free for almost 5 glorious years
and strangely, it was also the same time my ex-husband
also changed HMO that wouldn't cover my Neurologist,
but he closed his office when his father died, and he
quit being a Doctor.

They just never could get me back on this meds again
and I developed allergic reaction to Phenobarbital,
and everything just went haywire and they just ended
up leaving me with Dilantin alone.

COUNT IT - that's 5 Anticonvulsants - 5 AED's!
 
hi at the momet i am on 1 med 2 in a morning 2 at night
i'm on lamictal 25mg 4x

i do feel i have had sz last month or so becouse mean feeling not my slef what dont now what to do here any adive

caz xx
 
cool1984 said:
hi at the momet i am on 1 med 2 in a morning 2 at night
i'm on lamictal 25mg 4x

i do feel i have had sz last month or so becouse mean feeling not my slef what dont now what to do here any adive

caz xx
Click to expand...



Then talk to your Doctor and tell him/her how you are or
have been feeling, write a journal or a log or a diary -
even a notebook would do.

I am just on 2 meds and they're both working great
for me right now.

Will keep you in my thoughts and prayers Caz!
Hope you feel better soon!

 
hi i been to the doctors i'm what ur a mistry lol i not been around to much today i am off to bed i dont feel well :oops: :cry: :(

caz i expline more torrow
 
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