My grandson who is 3 was dianogsed with epilepsy a year ago March. He was 1st put on Depakote, stopped the grand mall but didn't stop the clonic jerk seizures. Added Keppra, no change and finally zone(something), still no change. They visit the doctor every 3 months and only speak with the nurse in between. They saught a second oppion in April from a doctor from the same hospital. He suggested ACTH steroid treatment. The seizures lessened after 5 days down to 3, but went back upafter a week. Upped the steroid for 4 days, had another EEG and there had been no change in brain activity. At first the doctor said the condition was ESSES, then Dooses syndrum, I feel like they are guessing, which I know they have to try different things, but what next.
He is delayed in mental development, he says very few words and we are testing him for Austism. Doesn't sleep well at night, wakes up with seizures.
Any help or advice would be appreciated. I feel so helpless. Wondering what others have done in the same situation.
He is delayed in mental development, he says very few words and we are testing him for Austism. Doesn't sleep well at night, wakes up with seizures.
Any help or advice would be appreciated. I feel so helpless. Wondering what others have done in the same situation.