I apologise if this is the wrong forum for this but I'm wondering when one is able to relax a little about having a seizure and going out when living with epilepsy is still very new to you.
My mother is awaiting an official diagnosis after having an absence seizure one month ago, she spent 8 days in hospital for that, and having a grand mal last week followed by another absence later that day, and before and after the hospital stay, what appears to have been several complex partial seizures.
I'm probably expecting too much at the moment as it's early days yet, but when does that sick feeling in the pit of your stomach ease?
I feel so uptight, convinced that she could have a seizure at any time, that she could have a grand mal and die. That she'll have yet another complex partial and become ill and very distressed again, that's something I find hard to take. I want to be able to deal with in order to help her.
I'm finding myself setting my alarm for 8am every morning, in spite of not going to bed until 4am or so,because that's when she wakes up and I don't feel comfortable leaving her alone for any period of time at present. Checking on her every 10 minutes if she's in her room resting,checking that she's ok every 5 minutes when having a shower etc.
She doesn't feel terribly secure at the moment, though more so than I do, in that she insists on locking the bathroom door stating that the lock is very flimsy, not flimsy enough for my liking so I'd prefer that she doesn't lock it.
I don't want to smother her but I am very concerned about her health and in particular the thought of her returning to work and having to travel on public transport.
Am I being utterly ridiculous? How can I learn to relax a little and give her some space?
My mother is awaiting an official diagnosis after having an absence seizure one month ago, she spent 8 days in hospital for that, and having a grand mal last week followed by another absence later that day, and before and after the hospital stay, what appears to have been several complex partial seizures.
I'm probably expecting too much at the moment as it's early days yet, but when does that sick feeling in the pit of your stomach ease?
I feel so uptight, convinced that she could have a seizure at any time, that she could have a grand mal and die. That she'll have yet another complex partial and become ill and very distressed again, that's something I find hard to take. I want to be able to deal with in order to help her.
I'm finding myself setting my alarm for 8am every morning, in spite of not going to bed until 4am or so,because that's when she wakes up and I don't feel comfortable leaving her alone for any period of time at present. Checking on her every 10 minutes if she's in her room resting,checking that she's ok every 5 minutes when having a shower etc.
She doesn't feel terribly secure at the moment, though more so than I do, in that she insists on locking the bathroom door stating that the lock is very flimsy, not flimsy enough for my liking so I'd prefer that she doesn't lock it.
I don't want to smother her but I am very concerned about her health and in particular the thought of her returning to work and having to travel on public transport.
Am I being utterly ridiculous? How can I learn to relax a little and give her some space?