I am VERY new to this I have had seizures since I was 10...But this is my issue sorry it is long but I need an answer or some thing...
2001 i was put on Topamax alone with luck i was FINALLY seizure free, or so i thought. In 2004, I had a break through seizure and had a neurologist put me on tegretol with it. That made my seiures worse. I got a new neurologist who took me off because they were contradicting each other and put me on Lamictal. In April '05, they did the 5 day no meds in the hospital 24 hour EKG thing. THAT is when i found out i had Juvenile Myoclonic Epilepsy, they told me i was loosing about 7 seconds of every minute and didnt even know it. Wonderful...right? So....in '06 i have a child that almost kills both of us because during my 7th month, in which he is born and i begin a spree of seizures that will continue at two a week for about 3 months and then lessen and stop by Dec. They stay under control I am able to drive again and no seizures.
September '09, i forgot to take my meds...dumb @#$ i had a seizure. November, i had a seizure and blacked my own eye, who knows why, December, I had a seizure gave myself a concussion, who knows why. End of Jan, first of Feb...had another broke my jaw in three places, was put on the "so called" miracle drug Vimpat at the same time with my Lamictal and Topamax.
Two weeks ago...On Monday night, i had a seizure, Tuesday morning, i had a seizure. Went to my neurologist on Wed who took me off the Vampit and told me guess it didnt work for you, and raised my Topamax. My hearing as of late seems to be going, i suffer major memory loss, and yet my fear is when am i going to have the next one. i have been very lucky to not be alone. Having to file for FMLA now for myself and my husband. I dont care about having my disorder but i want to stop having the seizures and living in fear.
2001 i was put on Topamax alone with luck i was FINALLY seizure free, or so i thought. In 2004, I had a break through seizure and had a neurologist put me on tegretol with it. That made my seiures worse. I got a new neurologist who took me off because they were contradicting each other and put me on Lamictal. In April '05, they did the 5 day no meds in the hospital 24 hour EKG thing. THAT is when i found out i had Juvenile Myoclonic Epilepsy, they told me i was loosing about 7 seconds of every minute and didnt even know it. Wonderful...right? So....in '06 i have a child that almost kills both of us because during my 7th month, in which he is born and i begin a spree of seizures that will continue at two a week for about 3 months and then lessen and stop by Dec. They stay under control I am able to drive again and no seizures.
September '09, i forgot to take my meds...dumb @#$ i had a seizure. November, i had a seizure and blacked my own eye, who knows why, December, I had a seizure gave myself a concussion, who knows why. End of Jan, first of Feb...had another broke my jaw in three places, was put on the "so called" miracle drug Vimpat at the same time with my Lamictal and Topamax.
Two weeks ago...On Monday night, i had a seizure, Tuesday morning, i had a seizure. Went to my neurologist on Wed who took me off the Vampit and told me guess it didnt work for you, and raised my Topamax. My hearing as of late seems to be going, i suffer major memory loss, and yet my fear is when am i going to have the next one. i have been very lucky to not be alone. Having to file for FMLA now for myself and my husband. I dont care about having my disorder but i want to stop having the seizures and living in fear.