Who has a RNS

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

valeriedl

valeriedl

VIP
Moderator
Benefactor
Supporter
Messages
5,978
Reaction score
989
Points
268
I'm getting a RNS in two weeks and I'd like to hear from people who have them, I have a few questions that you might be able to answer.

How long was your hospital stay?
How did you feel with it at first? For example I have a VNS and get a tingle in my throat when it goes off, anything like that?
How much of your hair did they shave off? I'm planning on all of it because I don't want to have just one big bald spot.

Thanks
 
Last edited:
You must log in or register to reply here.
Back
Top Bottom