Just thought of something else that really helped a lot...I know it is incredibly stupid, but even though E 'showed up' several years ago, I did not really deal with it at all until more recently after I finally went to a great neurologist. Finally understood better what was med related as well as that I was actually having different types of seizures and some things that go along with them. For example, I had never been 'moody' or gotten really angry before, but helped him to understand that before and after a partial seizure I might exhibit those emotions and they are not related to how I feel about him, etc...I had not done research, went on web-sites like this, etc...guess I was sorta hoping it would go away just as it had showed up. If your partner has not done it, maybe he could consider when he is ready..it has been such a great thing to come to this web-site for me I cannot even describe it. No more of this alone stuff and I have learned so much just by reading all of the posts/conversations. You, Erin and others have even made it much more real for us in terms of really knowing that others have went or are going through this as well, and we all have or are struggling a bit at times, so that is normal.
In case you have not tried this: The Doc told me to do something rather simiple, and it has helped a lot: I sat down with my partner and decided on what to do when: If I am in seizure status for more than 5 minutes, call 911...if I am having a seizure, darken the room and put a cool rag on my head and pillow under me immediatley afterwards when you can, and dont panic, give me a bit of "room'', it really will be ok...just whatever you and your partner/spouse needs to be comfortable with and it will help you a lot I think...it gave us a bit of control over something that perhaps felt so out of our control before when it happened. Also did this with a couple of close friends that I spend social time with and they expressed great appreciation for it as they feel more comfortable since they know what to do for me as well as what not to do for me (i.e., dont automatically call and ambulance no matter how bad you want to lol). Just some thoughts.
In case you have not tried this: The Doc told me to do something rather simiple, and it has helped a lot: I sat down with my partner and decided on what to do when: If I am in seizure status for more than 5 minutes, call 911...if I am having a seizure, darken the room and put a cool rag on my head and pillow under me immediatley afterwards when you can, and dont panic, give me a bit of "room'', it really will be ok...just whatever you and your partner/spouse needs to be comfortable with and it will help you a lot I think...it gave us a bit of control over something that perhaps felt so out of our control before when it happened. Also did this with a couple of close friends that I spend social time with and they expressed great appreciation for it as they feel more comfortable since they know what to do for me as well as what not to do for me (i.e., dont automatically call and ambulance no matter how bad you want to lol). Just some thoughts.