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Our nearly 6 year old son has recently been diagnosed with generalised epilepsy (much to our surprise as he has never had a fit). We had only taken him to a neurologist last November as his school wanted to rule out any physical issues as he was having trouble keeping up at school. The 24 hour EEG showed he is having relatively frequent seizures lasting 2 to 7 seconds: petits mals with little or no physical manifestation. We have subsequently put him on Epilim and he is now on a 600mg does once a day. He only started Epilim in March so it is early days. However, he is still complaining that he is dizzy (we think this may be when he is having a seizure but are not 100% sure) and to this we now have headaches and tummy aches. He has also started to put on weight (already visibly noticeable) and is asking for seconds of everything. On top of all this he is also starting to behave badly. It's really hard to know whether the drug is working, given it's difficult to tell whether he is still having the seizures or not.
I was wondering whether anyone else has been in a similar situation and any advice they might have.
We are due to see the neurologist again but not until mid July.
I was wondering whether anyone else has been in a similar situation and any advice they might have.
We are due to see the neurologist again but not until mid July.