First and foremost I want to thank everyone here who has posted about your current treatments, supplimentals, and augmented therapies. If that information had not been posted, I would not have been as nearly ready for my visit with the new neuro today.
The visit started out as anyother neuro visit, all background stuff. This time though I supplied the neuro with a written diary of sorts regarding my episodes. As she reviewed this brief documentation she asked me very specific questions about each incident. :shock:
She then moved on to the typical paperwork of the dreaded check boxes. We got through that mess and began covering medications, which would have been a short list except for my list of 'new suppliments' I started. As we discussed my use of suppliments to help support proper brain chemistry she was impressed with the body of knowledge and effort I had put into my self-prescribed regimen. She made no negative comments about what I had put together nor anything about the dosages.
As we continued to discuss my situation and review my list of questions(yes I had 1 1/2 pages of questions) we came to one question in particular. AED medications and I had written after it, if need at all at the present time . Her response was that it was a good question given my current status. We worked our way through the rest my list. And as we closed, I asked what about medication as she really hadn't hinted at anything she was thinking about prescribing. She then asked me right back if I wanted to start medication? I of course indicated, no not if it isn't necessary. Her response was she agreed
. In fact, she felt due to the type of seizures, the infrequency, time they occured etc. she would not start medication unless things turned worse or I had another 6 seizures in the next 3 months. She went on to say I should add Folic Acid and Vitamin D to my regimen!
I let her know I was surprised by her answer. Her response was obviously I was concerned about what is happening during these episodes and was well informed regarding the idea that extreme stress is messing with my brain chemistry. Armed with the knowledge I have been taking logical steps to help myself and it seems to be working. She did provide me with a few sample packs of Keppra in case things turn worse, but to only take 1/4 the dose recommended if needed. And if needed means if I start to have several seizures in one night, which has never happened.
She still wants to do two types of EEG's 3 months apart, but doesn't expect to see anything.
What's the regimen?
1000 mg. Flaxseed oil (2x)
30 mg. Chelated Magnesium (1x)
100 mg. 5 - HTP (1x at night)
1000 mcg. B-12 (2x)
500 mg. Taurine (2x)
10 mg. Co-Q-10 (3x)
400 IU Vitamin E (2x)
*Now will be adding Folic Acid and Vitamin D to the regimen
The visit started out as anyother neuro visit, all background stuff. This time though I supplied the neuro with a written diary of sorts regarding my episodes. As she reviewed this brief documentation she asked me very specific questions about each incident. :shock:
She then moved on to the typical paperwork of the dreaded check boxes. We got through that mess and began covering medications, which would have been a short list except for my list of 'new suppliments' I started. As we discussed my use of suppliments to help support proper brain chemistry she was impressed with the body of knowledge and effort I had put into my self-prescribed regimen. She made no negative comments about what I had put together nor anything about the dosages.
As we continued to discuss my situation and review my list of questions(yes I had 1 1/2 pages of questions) we came to one question in particular. AED medications and I had written after it, if need at all at the present time . Her response was that it was a good question given my current status. We worked our way through the rest my list. And as we closed, I asked what about medication as she really hadn't hinted at anything she was thinking about prescribing. She then asked me right back if I wanted to start medication? I of course indicated, no not if it isn't necessary. Her response was she agreed
. In fact, she felt due to the type of seizures, the infrequency, time they occured etc. she would not start medication unless things turned worse or I had another 6 seizures in the next 3 months. She went on to say I should add Folic Acid and Vitamin D to my regimen! I let her know I was surprised by her answer. Her response was obviously I was concerned about what is happening during these episodes and was well informed regarding the idea that extreme stress is messing with my brain chemistry. Armed with the knowledge I have been taking logical steps to help myself and it seems to be working. She did provide me with a few sample packs of Keppra in case things turn worse, but to only take 1/4 the dose recommended if needed. And if needed means if I start to have several seizures in one night, which has never happened.
She still wants to do two types of EEG's 3 months apart, but doesn't expect to see anything.
What's the regimen?
1000 mg. Flaxseed oil (2x)
30 mg. Chelated Magnesium (1x)
100 mg. 5 - HTP (1x at night)
1000 mcg. B-12 (2x)
500 mg. Taurine (2x)
10 mg. Co-Q-10 (3x)
400 IU Vitamin E (2x)
*Now will be adding Folic Acid and Vitamin D to the regimen
