Coping With Epilepsy Neurofeedback & Counseling Associates
10% off neurofeedback training for CWE members - Las Vegas, NV and Denver, CO
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Library



Reply
 
LinkBack Thread Tools
  #1  
Old 10-06-2007, 11:05 AM
Weaving the Community Fabric
 
Join Date: Aug 2007
Location: Amherst, MA
Posts: 153
Thanks: 0
Thanked 20 Times in 16 Posts

Eye movement: possible prevention of seizures?


I am trying to do a research here about a possible connection between eye movement and seizures. There is a treatment called NeuroLinguistic Programming (NLP) that trains people to have more control over their brains by moving their eyes in a particular direction. Ex., if you look to left, right hemisphere is busy; vice-versa.

The reason I'm looking into this is my own seizures are obviously right temporal lobe dominant. I have a hunch that perhaps my seizures could be averted by moving my eyes right, making left hemisphere more dominant. I'm curious if anyone else has tried this out.
Reply With Quote
  #2  
Old 10-06-2007, 02:20 PM
angel's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2007
Location: Oregon
Posts: 760
Thanks: 0
Thanked 19 Times in 8 Posts
Originally Posted by John-Forrest View Post:
I am trying to do a research here about a possible connection between eye movement and seizures. There is a treatment called NeuroLinguistic Programming (NLP) that trains people to have more control over their brains by moving their eyes in a particular direction. Ex., if you look to left, right hemisphere is busy; vice-versa.

The reason I'm looking into this is my own seizures are obviously right temporal lobe dominant. I have a hunch that perhaps my seizures could be averted by moving my eyes right, making left hemisphere more dominant. I'm curious if anyone else has tried this out.
Ive never tired it... when i was driving long distances i noticed seizures and a few times not many while walking also a few while watching this new tv my husband bought its a plasma 65 in wide screen i seem to be having trouble watching it ......

I cant see where that might help but you never know if you try it let me know if it works for you... kinda made me dizzy just thinking about it sounds intresting tho

Love angel

Last edited by angel; 10-07-2007 at 09:55 AM. Reason: rephrase, i apologize for my wrong wording
Reply With Quote
  #3  
Old 10-06-2007, 06:10 PM
Bernard's Avatar
Your Host
Recent Blog: Oh poop
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 6,517
Thanks: 771
Thanked 2,290 Times in 817 Posts
Originally Posted by angel View Post:
when i drive ive noticed seizures
You really shouldn't be driving if you are having uncontrolled seizures during the daytime.
__________________
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
Reply With Quote
  #4  
Old 10-06-2007, 07:37 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,836
Thanks: 181
Thanked 733 Times in 554 Posts
Send a message via Yahoo to RobinN
I read in another forum that a rapid left right movement of the eyes helped some. I guess if you know that they are heading round the bend, this might be good to practice. Unfortunately Rebecca doesn't have a warning. It might be a good exercise every half hour no matter what.
Reply With Quote
  #5  
Old 10-06-2007, 09:20 PM
angel's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2007
Location: Oregon
Posts: 760
Thanks: 0
Thanked 19 Times in 8 Posts
(You really shouldn't be driving if you are having uncontrolled seizures during the daytime.) I dont anymore


I only drive about half block on a dirt road to get my kids to the buss stop about 5 miles an hour when i was driving into town it takes about 45 min to get there thats when i was having problems..

look at this video i use to go skydiving ILOVE THIS VIDEO!!!! it sings to my soul

Reply With Quote
  #6  
Old 10-07-2007, 01:48 AM
Account Closed
 
Join Date: Feb 2007
Location: Tampa Bay Region, FL
Posts: 3,452
Thanks: 28
Thanked 19 Times in 14 Posts
Originally Posted by Bernard View Post:
You really shouldn't be driving if you are having uncontrolled seizures during the daytime.
Bernard is 100% correct.

I surrendered my Driver's License for that
very reason and I am not ashamed to admit
it after years of driving.

After a Tonic Clonic attack one day, it made
me realize this (after the Cop Pursuit accident
where a felon fleeing that knocked a vehicle
out and then turned around and went on a
high speed chase and lost control and then
knocking our car out and totally destroying it):

1) A lot of things went on my mind of what
could have happened if I had a seizure - just
caused me to shudder. I have been blessed
and fortunate to have a wonderful driving
record. I could never live with myself if I had
killed some innocent person or people all because
of a seizure.

2) I just knew my seizures weren't controlled.

3) I knew I had to do what was right; surrender.
But it took me awhile to get down there as I had
to recover from the accident injuries to ride my
bicycle down there to surrender voluntarily. I still
do not have any regrets for what I have did and
done. Indeed hardships have come my way, but
that's life. Life can be cruel sometimes, but I'd
rather to endure than to see a child without a
"mommy" or to see parents attending their only
son's funeral - all because I killed them by being
selfish - driving while knowing that my seizures
weren't being controlled.



It's a bitter pill to swallow. But I did what was
right and knowing that it was the right thing to
do in spite of what others said and say, and even
argued about it.

Reply With Quote
  #7  
Old 10-07-2007, 09:10 AM
Weaving the Community Fabric
 
Join Date: Aug 2007
Location: Amherst, MA
Posts: 153
Thanks: 0
Thanked 20 Times in 16 Posts
I think this is drifting off the original topic. There is a thread about driving elsewhere. As for myself, I think people have to make their own choices about this one - it shouldn't be forced upon them.

Now what was that about eye movements? Anyone find research about it, let me know.
Reply With Quote
  #8  
Old 10-07-2007, 12:59 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,836
Thanks: 181
Thanked 733 Times in 554 Posts
Send a message via Yahoo to RobinN
I am not finding information on this John except for those folks that tend to have seizures during the REM sleep. I do remember however how whenever I had a really bad migraine comeing on I could sometimes halt it by playing the piano. Now, I am not a musician. A piano was left in our house when we moved in, and I taught myself how to play it. So it was the fact that I was using a part of my brain that does not typically get used, that I came to realize helped the blood flow or electrical charge withing my brain. (I'm not a specialist in the functioning of the brain either, I just know it prevented my headaches).

So maybe it is a matter of coming to an abrupt deadend and making a quick change of direction. Creating a new road map so to speak.
I don't know.. just thinking out loud.
Reply With Quote
  #9  
Old 10-07-2007, 10:52 PM
Weaving the Community Fabric
 
Join Date: Aug 2007
Location: Amherst, MA
Posts: 153
Thanks: 0
Thanked 20 Times in 16 Posts
Robin,

All I know is it IS possible to stop seizures by some form of distractive activity - by sending the neural energy somewhere else rather than let it all go in whirlpool (down the drain) around the focal point. See "Epilepsy: A New Approach". That's where I found out about this. I can't promise it would work for all people, but apparently some people can do this.

Let's keep our eyes open about this and exchange information if we discover something promising.
Reply With Quote
  #10  
Old 10-07-2007, 11:46 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,836
Thanks: 181
Thanked 733 Times in 554 Posts
Send a message via Yahoo to RobinN
I think so too. My daughter never has a seizure when figure skating or dancing.
Music for some tends to take it to another area of the brain.
Rebecca tends to get stuck in her thinking. I use to make the analogy that it was like she was stuck in a box. I am curious if others do the same.
Reply With Quote
  #11  
Old 10-08-2007, 09:29 AM
angel's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2007
Location: Oregon
Posts: 760
Thanks: 0
Thanked 19 Times in 8 Posts
hi John,

I was looking around last night and this morning,

Le Vanquyen, M. and Petitmengin,"Neuronal dynamics and conscious experience: an example of reciprocal causation before epileptic seizures"

from what im reading has an article that might be worth reading "Neurophenomenology is not only philosophical but also empirical and experimental."

Our purpose in this article is to illustrate concretely the efficiency of this approach in the field of neuroscience and, more precisely here, in epileptology.

A number of recent observations have indicated that epileptic seizures do not arise suddenly simply as the effect of random fluctuations of brain activity, but require a process of "pre-seizure" changes that start long before.

This has been reported at two different levels of description: on the one hand, the epileptic patient often experiences some warning symptoms that precede seizures from several minutes to hours in the form of very specific lived events.

On the other hand, the analyses of brain electrical activities have provided strong evidence that it is possible to detect a pre-seizure state in the neuronal dynamics several minutes before the electro-clinical onset of a seizure.

We review here some of the ongoing work of our research group concerning seizure anticipation. In particular, we discuss experimental evidence of 'upward' (local-to-global) formation of conscious experience and its neural substrate, but also of the 'downward' (global-to-local) determination of local neuronal activity by situated conscious activity and its substrate large-scale neural assemblies.

This causal role of conscious experience may lead to new kinds of therapy for epileptic patients.

http://www.springerlink.com/content/u1r534321860l845/
Reply With Quote
  #12  
Old 10-08-2007, 11:10 AM
Weaving the Community Fabric
 
Join Date: Aug 2007
Location: Amherst, MA
Posts: 153
Thanks: 0
Thanked 20 Times in 16 Posts
"A number of recent observations have indicated that epileptic seizures do not arise suddenly simply as the effect of random fluctuations of brain activity, but require a process of "pre-seizure" changes that start long before."

I find this intriguing. I know for myself that sometimes on a day when I'm likely to have a seizure (and often do), I wake up with a certain groggy feeling, not feeling altogether "right in the head", as if my head were "chopped in half". This would be a good warning to play it safe, don't do anything dangerous.

Idea here: Hook up device to indicate this "pre-seizure" state. If I'm going into it, it'll buzz or ring - then I make sure I'm in safe place. Or do they already have those?
Reply With Quote
  #13  
Old 10-08-2007, 11:22 AM
angel's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2007
Location: Oregon
Posts: 760
Thanks: 0
Thanked 19 Times in 8 Posts
Originally Posted by John-Forrest View Post:
"A number of recent observations have indicated that epileptic seizures do not arise suddenly simply as the effect of random fluctuations of brain activity, but require a process of "pre-seizure" changes that start long before."

I find this intriguing. I know for myself that sometimes on a day when I'm likely to have a seizure (and often do), I wake up with a certain groggy feeling, not feeling altogether "right in the head", as if my head were "chopped in half". This would be a good warning to play it safe, don't do anything dangerous.

Idea here: Hook up device to indicate this "pre-seizure" state. If I'm going into it, it'll buzz or ring - then I make sure I'm in safe place. Or do they already have those?
from what I've been reading this morning Martinerie, Jacques
(Palaiseau, FR), Le Van Quyen,Michel (Paris, FR)

Lachaux, Jean-Philippe
(Bourg-La Reine, FR), Renault
Bernard (Paris, FR)

are all working together on device to indicate this "pre-seizure"
Reply With Quote
  #14  
Old 10-08-2007, 11:26 AM
angel's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2007
Location: Oregon
Posts: 760
Thanks: 0
Thanked 19 Times in 8 Posts
http://www.collectionscanada.ca/obj/...03/MQ45985.pdf

Ive just down loaded this and have'nt had time to read it yet..


"Chaosmakers for Epilepsy."
Reply With Quote
  #15  
Old 10-08-2007, 11:29 AM
angel's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2007
Location: Oregon
Posts: 760
Thanks: 0
Thanked 19 Times in 8 Posts
Originally Posted by angel View Post:
http://www.collectionscanada.ca/obj/...03/MQ45985.pdf

Ive just down loaded this and have'nt had time to read it yet..


"Chaosmakers for Epilepsy."
Epileptic seizures correspond to episodes of increased rhythmici. of the chaotic neuronal
activity in the healthy brain. It is beIieved that through the suppression of the rhythmic
dynamics. seizures may be eliminated. This is the objective of the chaosmaker.
Reply With Quote
  #16  
Old 10-08-2007, 11:59 AM
Bernard's Avatar
Your Host
Recent Blog: Oh poop
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 6,517
Thanks: 771
Thanked 2,290 Times in 817 Posts
Originally Posted by John-Forrest View Post:
All I know is it IS possible to stop seizures by some form of distractive activity - by sending the neural energy somewhere else rather than let it all go in whirlpool (down the drain) around the focal point. See "Epilepsy: A New Approach". That's where I found out about this.
Dr. Reiter's book ties in with his work with Dr. Andrews: Neurobehavioral / Cognitive Behavioral Therapy (CBT)
__________________
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
Reply With Quote
  #17  
Old 10-08-2007, 12:03 PM
angel's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2007
Location: Oregon
Posts: 760
Thanks: 0
Thanked 19 Times in 8 Posts
WINSTON-SALEM, N.C. (Ivanhoe Broadcast News) -- Epilepsy is described as an uncontrollable storm in the brain that can cause seizures. Common treatment options are medication or surgery to remove the part of the brain causing the seizures. Now, a brand new device is being tested that may stop seizures in their tracks.

http://www.ivanhoe.com/channels/p_ch...?storyid=16976
Reply With Quote
  #18  
Old 10-08-2007, 12:16 PM
angel's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2007
Location: Oregon
Posts: 760
Thanks: 0
Thanked 19 Times in 8 Posts
Originally Posted by angel View Post:
WINSTON-SALEM, N.C. (Ivanhoe Broadcast News) -- Epilepsy is described as an uncontrollable storm in the brain that can cause seizures. Common treatment options are medication or surgery to remove the part of the brain causing the seizures. Now, a brand new device is being tested that may stop seizures in their tracks.

http://www.ivanhoe.com/channels/p_ch...?storyid=16976
Epilepsy Breakthrough On Horizon: MIT Developing Device To Detect Oncoming Seizures

http://www.sciencedaily.com/releases...0912215213.htm

The device could also be adapted to provide warnings for patients who don't need or want VNS implants. Once the device alerts the patient that a seizure is imminent, that person could take steps to minimize injury, such as sitting down or moving away from potentially dangerous objects, such as a hot stove.

"If you could just give someone a little bit of warning they're about to have a seizure, it could be hugely valuable," Guttag said. "The seizures themselves aren't usually damaging to the brain in the long term. It's mostly about the collateral damage."
Reply With Quote
  #19  
Old 10-08-2007, 09:00 PM
angel's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2007
Location: Oregon
Posts: 760
Thanks: 0
Thanked 19 Times in 8 Posts

Or do they already have those?


Originally Posted by John-Forrest View Post:
"A number of recent observations have indicated that epileptic seizures do not arise suddenly simply as the effect of random fluctuations of brain activity, but require a process of "pre-seizure" changes that start long before."

I find this intriguing. I know for myself that sometimes on a day when I'm likely to have a seizure (and often do), I wake up with a certain groggy feeling, not feeling altogether "right in the head", as if my head were "chopped in half". This would be a good warning to play it safe, don't do anything dangerous.

Idea here: Hook up device to indicate this "pre-seizure" state. If I'm going into it, it'll buzz or ring - then I make sure I'm in safe place. Or do they already have those?
I have a question for you? Are you looking for treatments or Business Ideas That Might make you some money? Or both

please take no offense to my question I'm just curious

love angel
Reply With Quote
  #20  
Old 10-08-2007, 11:16 PM
Account Closed
 
Join Date: Feb 2007
Location: Tampa Bay Region, FL
Posts: 3,452
Thanks: 28
Thanked 19 Times in 14 Posts
Originally Posted by angel View Post:
I have a question for you? Are you looking for treatments or Business Ideas That Might make you some money? Or both

please take no offense to my question I'm just curious

love angel
I was going to ask the same question but you
beat me to it. Thank you Angel.
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On



All times are GMT -5. The time now is 08:57 PM.


Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.