Coping With Epilepsy Brian Othmer Foundation
Free Advertisement

Go Back   Epilepsy Forum > Peer Support > The Kitchen

LinkBack Thread Tools
Old 01-26-2019, 06:13 AM
Joined the Party
Join Date: Feb 2014
Posts: 96
Thanks: 6
Thanked 15 Times in 12 Posts


Having had surgery exactly 2 years ago, and my last seizure being 2 exactly 2 years ago (how quick times gone by!), can I ever be in a position I can COMPLETELY forget of epilepsy?, and see myself as "cured?
I was told the longer I'd go without having had a seizure, the less likely I would age have one again. I can't help put ALWAYS have even 1% of worry in the back of my mind of the potential of having another seizure... Even if its the most miniscule thing.
Reply With Quote
Old 01-26-2019, 10:32 AM
Super Moderator / Thank You Queen
Join Date: Jun 2005
Location: Massachusetts
Posts: 16,421
Thanks: 943
Thanked 7,308 Times in 5,391 Posts
Are you off meds and everything? Wow, that's terrific!

There have only been a few studies about post-surgery remission, so there's not a lot of data out there. And those are just numbers anyway. But maybe you're asking if epilepsy will become a very distant benign memory? Or booted off your list of worries altogether?

I'm not sure whether it's worth trying to banish it completely from your mind -- that's a bit like trying to forget an ex-husband, or that time you got arrested when you were a teenager.

Epilepsy may be still be on your worry-list, but it's moving way to the bottom of that list, and that in itself is worth celebrating! CWE member Bigman posts every month that he remains seizure-free: You don't have to do the same, but don't fret if you occasionally worry a tiny bit about having a seizure -- that's normal, and it would be surprising if you didn't.

Congrats, and enjoy the now.
Reply With Quote
Old 01-26-2019, 10:37 AM
Joined the Party
Join Date: Feb 2014
Posts: 96
Thanks: 6
Thanked 15 Times in 12 Posts

I'm still on 1500mg keppra and 200mg lamotrigine (day/night). From the report by the neurosurgeon post surgury, there was mension of being taken off medication after a few years, IF I have no issues. I've not seen my consultant for 6 months so planning on seeing him in the next few months to get his input on the matter.
Reply With Quote

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On

Similar Threads
Thread Thread Starter Forum Replies Last Post
[News] Arizona Man Cured of Seizures Cint The Library 7 10-09-2013 10:38 AM
EPI Cured With GFDiet-Med Report Zoe The Library 0 01-17-2009 01:43 PM

All times are GMT -5. The time now is 12:55 PM.

Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.