1. E

    Celiac Seizures

    I wanted to give an update on my son's diagnosis in case it might help someone else. Nov 2013 my son had his first seizure. Complex partial. Middle of the day. It was preceded by a tiring weekend trip and accidental gluten exposure during our travels. He was diagnosed with BRE after an EEG that...
  2. M

    I've Got An Eight Year Old With Benign Rolandic Epilepsy

    Hello, I'm new here, but have been dealing with epilepsy for a little over a year now. In September of 2010, my son (then 6), was diagnosed with Benign Rolandic Epilepsy. Our intent was to avoid medication, but his second and third seizures were both extended and required rescue medication so...
  3. 1

    Benign Rolandic Epilepsy

    Hello! I am new to this forum and am looking for others who are familiar with BRE. My son, Jack, was diagnosed in 2008 and goes thru daytime seizures (and some upon wakening) every 4 months or so. I'm curious to find out what others are doing as far as treatment and just dealing with this...
  4. C

    New with some questions on BRE

    I am new and having trouble sorting through all the information out there. Our daughter was just diagnosed with BRE. She is 7 and had her 1st seizure on 8/17/09 and then another on 9/6. We saw a Neuro in-between seizures and he suspected BRE from descriptions of her generalized seizure and the...
  5. S

    2 daughters with Benign Rolandic Epilepsy

    Hello~ My name is Stacey. I would like to talk to parents or siblings who are going through this. My girls, Molly who is 8 and Hannah who is 10, were diagnosed 5 years ago, 6 months apart. Molly is taking Trileptol and Hannah is still on Kepra. Molly is also ADHD. Its been such a long...
  6. C

    Meds necessary for BRE??

    My 6yr old was recently diagnosed with benign rolandic epilepsy. The neurologist wants to put her on keppra, but the more i read about this drug, the more it scares me to do it. Since her seizures are only at night, is it even necessary to medicate? Weighing the potential side effects of the...
  7. jaysmom

    13 year old with different types of seizures

    hi to everyone, tis sounds like a great place to get some info, support and feedback. glad to have found it. my 13 yr old boy was diagnosed benign rolandic epilepsy a few years ago. he has different kinds of seizures like facial seizures ...zoneing out and speaking garbled up words....confusion...
  8. Birdbomb

    First Gene Discovered For Most Common Form Of Epilepsy