juvenile myoclonic

  1. G

    Really Lost, too complicated case, plz help

    Hi, My name is George now 29 years old, I was diagnosed with Juvenile Myclonic Epilepsy when I was 10 years old. At that time I used to have absence seizures that would last for up to 6 seconds. It got better with Epilim but did not fully disappear. When I was about 23 years old I started having...
  2. S

    Have you found any alcohol that doesn't provoke seizures or do you just avoid it?

    I'm meeting a close friend tomorrow for the first time in the year. She only knew me pre-whatever-the-heck-is-wrong-with-me*, when I could drink alcohol like it was water. I am not planning on getting black-out drunk, I don't plan on getting remotely "tipsy" but I would like to just have one...
  3. S

    Experiencing myoclonic jerks, but not diagnosed with epilepsy

    Hi there! I'm new to this site and not really sure how this works, so sorry if I'm doing this wrong or whatnot.. but anyways, hi. :) I’m 19, almost 20, and have been plagued by what I call “twitches” for almost two years. These twitches are involuntary and I don’t know how to describe it, but...
  4. T

    Just saying hey!

    Hi there community! :hello: Here's how my story goes: I'm 18 and I've been recently diagnosed (recently as in.. two days ago) with JME. I was hospitalized after a grand mal seizure (hopefully the only one I'll ever have), but had myoclonic jerks for about two years now (I didn't pay much...
  5. R

    14 year old daughter just diagnosed with JME

    My daughter has had two tonic/clonic seizures since Monday of this week...she also had a seizure this afternoon where she didn't exactly lose consciousness but she jerked uncontrolled and seemed strangely happy/confused. Here is my biggest concern...the neuro put her on clobazam by itself as a...
  6. brain


    JUVENILE & MYOCLONIC SEIZURES AKA JME EPILEPSY including Lennox-Gastaut Here are some partial quotes: JME / MYOCOLINIC SEIZURES - from eMed MYOCLONIC SEIZURES - Epilepsy Foundation JME, MYOCLONIC, LENNOX-GASTAUT SEIZURES by Epilepsy.com Feel free to bring about any discussion as...