nmgma00
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Hello. My daughter has a genetic disorder called Turner Syndrome. She also is being treated for OCD, ADHD. Last week she had a tonic clonic--waist up--at school. This was a first for us and I am scared to death. She was admitted to the hospital and had ct, mri/mra and EEG. Diagnosed with "frontal lobe epilepsy." She was started on tegretol. She already takes a bunch of other meds and I'm so afraid she will become toxic that I've asked to have a level drawn already this week. We cannot get in to see the pediatric neuro until March 25th! AHH. I don't even know what to do first--and I work in health care!! My child is a very self-sufficient little lady and has been staying home after school for a while now and during the summers as well. Now I have to find a "sitter again"?? I constantly am checking on her and afraid to EVER leave her alone EVER again. I wake up and watch her sleep for fear of her choking or aspirating. How do the rest of you deal with this with older children? I understand that she will not be by herself until this is all under control but, at what point do you say "ok,you can stay home for a little bit" and not have a nervous breakdown?